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#healthdata

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Brittany Trang

NEW: CMS gets a pledge from AI companies, big tech companies, EHRs, insurers, and health data sharing networks that they'll make health data sharing easier.

Will this move the needle?

“I sure as hell hope so.”

Details from me and Mario Aguilar:

statnews.com/2025/07/30/health

STAT · Health care and tech companies promise CMS they'll make patient data more accessibleOver 60 organizations signed on to a pledge orchestrated by CMS to make health data-sharing easier.
#health#healthcare#healthtech
Jan R. Boehnke

"In June 2025, we heard the latest in a list of acts that is weakening the UK’s evidence base for policy-making: The Health #Survey for England, which has been running since 1991, will be discontinued after 2025."

Oyinlola Oyebode presents a personal view on the importance of the Health Survey for England
blog.ukdataservice.ac.uk/futur

and encourages people to take part in the consultation about its replacement
studies.ons.gov.uk/s/Future_HS

blog.ukdataservice.ac.ukHelp shape the future of population health surveys – Data Impact blog @ 10
#HealthData#HealthEconomics
Anthony
We caught 4 more states sharing personal health data with Big Tech
Healthcare exchanges in Nevada, Maine, Massachusetts and Rhode Island shared users’ sensitive health data with companies like Google and LinkedIn

Maine’s exchange, CoverME.gov, sent information on drug prescriptions and dosages to Google through an analytics tool. It also sent the names of doctors and hospitals that people had previously visited.
Google is an illegal monopoly, losing three different antitrust cases in the US over the last few years. None of us should be sending them data anymore, let alone state-run services.

https://themarkup.org/pixel-hunt/2025/06/17/we-caught-4-more-states-sharing-personal-health-data-with-big-tech

#maine #surveillance #healthcare #HealthData #BigTech #IllegalMonopoly
themarkup.orgWe caught 4 more states sharing personal health data with Big Tech – The MarkupHealthcare exchanges in Nevada, Maine, Massachusetts and Rhode Island shared users’ sensitive health data with companies like Google and LinkedIn
DoomsdaysCW

#WAHIS: World Animal Health Information System

"WAHIS is the global animal health reference database of the World Organisation for Animal Health (#WOAH). WAHIS data reflects the validated information since 2005 reported by the Veterinary Services from Member and non-Member Countries and Territories on terrestrial and aquatic Listed diseases in domestic animals and wildlife, as well as on emerging #diseases and #zoonoses.

"WAHIS includes interactive mapping tools and dashboards to support data consultation, visualization and extraction of officially validated animal health data."

wahis.woah.org/#/home

wahis.woah.orgWAHIS
#HPAINews#AvianInfluenza#H5N1
Auscandoc

Protect 'valuable' Canadian #healthdata from Trump's AI aspirations, experts urge ctvnews.ca/health/article/prot “Medical researchers and lawyers say our rocky relationship with the U.S. creates an urgent need to protect a critical Canadian resource: patient health information that can be used to train artificial intelligence.

“Our health data is the most valuable health data set in the world,” said Natalie Raffoul, an intellectual property lawyer in Ottawa. (1/3)

CTVNews · Protect ‘valuable’ Canadian health data from Trump’s AI aspirations, experts urgeMedical researchers and lawyers say our rocky relationship with the U.S. creates an urgent need to protect a critical Canadian resource: patient health information that can be used to train artificial intelligence.
Continued thread
Claire 🌊🇪🇺🇫🇷🌍

6/ Beyond articles, the CDC has already begun removing or altering health data on its website, including statistics on HIV and youth risk behavior. Experts fear this could distort public health efforts and hinder the ability to track diseases within key demographics. #HealthData #PublicHealthCrisis

Continued thread
Nonilex

The #FederalGovernment already has #laws safeguarding people’s #HealthData & #FinancialData, in addition to #protections for #children’s personal #data, but there’s no overarching standard to regulate the vast majority of the #collection, use & #sale of data that companies engage in #online.

While the #UnitedStates still lacks a federal #privacy #law, it’s been nearly 6 yrs since the #EU began implementing its own standards, which set limits on companies’ collection practices.

#Congress#tech
Brittany Trang

The Change Health cyberattack has sidelined prescriptions and medical care because providers can't communicate with insurers

United now says the attack involves a "suspected nation-state" 👀

The #FBI, HHS will be on a call with hospitals this afternoon

Has this outage affected you? ✉️ brittany.trang@statnews.com

statnews.com/2024/02/23/pharma

STAT · UnitedHealth cyberattack impedes pharmacies’ and hospitals’ ability to process insurance claimsHospitals and pharmacies are stuck in an insurance processing logjam after a cyberattack on UnitedHealth's Change Healthcare.
#cybersecurity#cyberattack#healthdata
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