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#PostCovid

7 posts6 participants2 posts today
Public
Tom Kindlon

Trial by Error by David Tuller

BMJ's Strange Response to Our Letter of Concern Regarding "Living Systematic review" of Long Covid Interventions

virology.ws/2025/03/28/trial-b

About ongoing aftermaths after Tuller with 18 colleagues sent a letter to BMJ requesting a correction to a problematic review of LC treatments.

@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain

virology.ws · Trial By Error: BMJ's Strange Response to Our Letter of Concern Regarding "Living Systematic Review" of Long Covid Interventions | Virology BlogBy David Tuller, DrPH In December, I sent a letter, co-signed by 18 colleagues, to The BMJ's editor in chief, Dr Kamran Abbasi. The letter requested a ...
Public
Tom Kindlon

“Canadian Guidelines for Post COVID-19 Condition: This set of guidelines has been updated with new recommendations.”
canpcc.ca/guidelines/

Summary by an advocate: s4me.info/threads/canadian-gui

@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain

Canadian Guidelines for Post-COVID-19 Condition (CAN-PCC)Guidelines - Canadian Guidelines for Post-COVID-19 Condition (CAN-PCC)CAN-PCC Guidelines and Good Practice Statements Post COVID-19 condition is a complex health condition that presents with a spectrum of symptoms and impact on daily life.This is why health professionals, people with lived experience, and other experts are working together to create the Canadian Guidelines for post COVID-19 condition (CAN-PCC). The CAN-PCC guidelines use the [...]Read More...
Public *
Omega_Scribet

'Steeds meer huisartsen schrijven off-label naltrexon bij postcovidpatienten voor’

"lage dosis naltrexon van maximaal 5 mg per dag, een middel dat off-label al langer gebruikt bij onder meer ME/chronisch vermoeidheidsyndroom (cvs). Achterliggende hypothese is dat deze lage dosering leidt tot pijnvermindering en een anti-inflammatoir effect. "

"Naltrexon in hoge dosering (25mg) is geregistreerd voor alcohol- en opioidenverslaving, doordat het de werking van morfine blokkeert."

"het opbouwschema van naltrexon op haar Instagram account gezet"

"Daarnaast zijn er nog andere (niet-)medicamenteuze stappen die je als huisarts kunt zetten, zoals nagaan of de pacing goed wordt uitgevoerd. En bij posturaal orthostatisch tachycardiesyndroom (POTS) drie liter water per dag en zout adviseren, en eventueel een steunpanty.’"

medischcontact.nl/actueel/laat

www.medischcontact.nl‘Steeds meer huisartsen schrijven offlabel naltrexon bij postcovidpatienten voor’Huisartsen schrijven postcovidpatiënten met postexertionele malaise (PEM) steeds vaker, off-label, een lage dosering naltrexon voor. Dat vertelden Jojanneke Kant en longarts Merel Hellemons (ErasmusMC, onder meer werkzaam bij postcovidkliniek) op het recent gehouden ‘long covid symposium’.
#gezondheid#LongCovid#PostCovid
Public
ahimsa

This is bad

"Saying ‘pandemic is over,’ NIH starts cutting COVID-19 research"

science.org/content/article/sa

"Science has learned that grant termination letters went out last night to principal investigators of 29 awards made by the National Institute of Allergy and Infectious Diseases (NIAID), including nine grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics."

@longcovid @mecfs

#Covid19#LongCovid#PostCovid
Public
Tom Kindlon

Recording with:

- Dr David Joffe: an overview of biological basis of Long COVID

- Dr David Tuller: on basis of psycho-behavioural therapy focusing on the PACE trial & a major #LongCOVID trial"

youtu.be/V9f_kjlz6Ho

From latest Science for ME update

@longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Kirby Institute Dr David Joffe & Dr David Tuller - Is Long Covid psycho-behavioural or biological? State of evidence Recording of a recent and great talk at Kirby Institute, Australia. "In this talk, Dr David Joffe will provide an overview of the biological basis of Long COVID, while Dr David Tuller will examine the basis of psycho-behavioural therapy focusing on the PACE trial and a major Long COVID trial."
Public
Tom Kindlon

From the Netherlands:

Post-COVID microvascular dysfunction in hospitalized COVID-19 survivors is associated with acute disease severity and persistent cognitive complaints

jns-journal.com/article/S0022-

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19

Journal of the Neurological Sciences Post-COVID microvascular dysfunction in hospitalized COVID-19 survivors is associated with acute disease severity and persistent cognitive complaints — Noa van der Knaap et al. "Our results provide additional evidence for microvascular damage in the [Normal Appearing White Matter], which may indicate subtle damage preceding [White Matter Hyperintensities] formation."
Public
Tom Kindlon

Emerge Australia Awards for Excellence in Journalism 2025

Links:
emerge.org.au/the-emerge-austr

abc.net.au/news/2024-12-29/pan

crikey.com.au/2024/12/02/long-

abc.net.au/news/2024-06-16/chi

thesicktimes.org/2024/06/25/my

From the latest Science for ME weekly update

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @auscovid19 #auscovid19 @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Australia Emerge Australia Awards for Excellence in Journalism 2025 "to recognise and honour the exceptional journalists who are dedicated to enhancing media coverage of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID." Announcement | Thread Hayley Gleason writing for ABC News "The pandemic’s untold fertility story" Jason Murphy writing for Crikey. "Long COVID is becoming a serious social and economic issue for Australia" Hayley Gleason (Winner) writing for ABC News "Too many children with long COVID are suffering in silence. Their greatest challenge? The myth that the virus is 'harmless' for kids" Felicity Nelson writing for The Sick Times "My partner and I both have Long Covid. We tread the underworld together."
Public
Tom Kindlon

Five years of Long Covid

Links:
NBC News
nbcnews.com/health/health-news

US News and World Report:
usnews.com/opinion/articles/20

Rolling Stone:
rollingstone.com/culture/cultu

s4me.info/threads/news-from-th

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

Five years of Long Covid The five year anniversary of the start the COVID-19 pandemic has prompted several media outlets to publish stories on Long Covid. NBC News: 5 years later, long Covid is still a medical mystery: What scientists have learned US News and World Report: 5 Years Since the COVID-19 Pandemic, Millions Like Me Are Still Sick Rolling Stone: Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid More stories in this Thread
Public
Johan Moir (Mastodon)

Today is #LongCovidAwarenessDay.

In the lack of having a good macroblog or similar, I tried to publish it on my Friendica.

I reposted it here, so you might get it double? Not sure how a Friendica post-share actually shows in this system (if it gets cropped or not?) so thats why I did the double share.

#postcovid
#longcovid
#longtermillness
#disabiliity
#longcovidawareness

friendica.world/display/84b6ef

friendica.worldJohan Moir (Friendica)Today is #LongCovidAwarenessDay. Tomorrow marks 5 years since I got sick. As a patient, you often need to stay focused in the present, adapting your days an...
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