Press release from Brazil:
"Even the mild form of #COVID19 tends to cause an imbalance in the cardiovascular system and requires attention"
https://www.eurekalert.org/news-releases/1078107

Full paper:
Impact of @COVID_19 on heart rate variability in #PostCovid ...
https://www.nature.com/articles/s41598-024-82411-w

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid19 #LC #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

News Release 25-Mar-2025
Even the mild form of COVID-19 tends to cause an imbalance in the cardiovascular system and requires attention
In a study of 130 volunteers conducted at the Federal University of São Carlos, a drastic decrease in heart rate variability, i.e. the heart’s ability to adapt to environmental and physiological demands, was observed – up to six weeks after infection

Peer-Reviewed Publication

**Tom Kindlon** @tomkindlon@disabled.social · 6d

Tom Kindlon @tomkindlon@disabled.social

Recording with:

- Dr David Joffe: an overview of biological basis of Long COVID

- Dr David Tuller: on basis of psycho-behavioural therapy focusing on the PACE trial & a major #LongCOVID trial"

https://youtu.be/V9f_kjlz6Ho

From latest Science for ME update

@longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Kirby Institute Dr David Joffe & Dr David Tuller - Is Long Covid psycho-behavioural or biological? State of evidence
Recording of a recent and great talk at Kirby Institute, Australia. "In this talk, Dr David Joffe will provide an overview of the biological basis of Long COVID, while Dr David Tuller will examine the basis of psycho-behavioural therapy focusing on the PACE trial and a major Long COVID trial."

**Tom Kindlon** @tomkindlon@disabled.social · Mar 24

Mar 24

Tom Kindlon @tomkindlon@disabled.social

From the US:

Altered auditory brainstem responses are post-acute sequela of SARS-CoV-2 (PASC)

https://www.nature.com/articles/s41598-025-93664-4

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

Nature Scientific Reports
Altered auditory brainstem responses are post-acute sequela of SARS-CoV-2 (PASC) — Niemczak et al.
"Our findings suggest that PASC may alter the central auditory pathway and lead to slower conduction and elevated auditory neurophysiology responses at the midbrain" "this latency result predicted cognitive fatigue on two independent measures"

**Tom Kindlon** @tomkindlon@disabled.social · Mar 24

Mar 24

Tom Kindlon @tomkindlon@disabled.social

From the Netherlands:

Post-COVID microvascular dysfunction in hospitalized COVID-19 survivors is associated with acute disease severity and persistent cognitive complaints

https://www.jns-journal.com/article/S0022-510X%2825%2900081-4/abstract

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19

Journal of the Neurological Sciences
Post-COVID microvascular dysfunction in hospitalized COVID-19 survivors is associated with acute disease severity and persistent cognitive complaints — Noa van der Knaap et al.
"Our results provide additional evidence for microvascular damage in the [Normal Appearing White Matter], which may indicate subtle damage preceding [White Matter Hyperintensities] formation."

**Tom Kindlon** @tomkindlon@disabled.social · Mar 23

Mar 23

Tom Kindlon @tomkindlon@disabled.social

Emerge Australia Awards for Excellence in Journalism 2025

Links:
https://www.emerge.org.au/the-emerge-australia-awards-for-excellence-in-journalism-2025/

https://www.abc.net.au/news/2024-12-29/pandemic-fertility-long-covid-snuffing-dreams-children-pregnancy/104687860

https://www.crikey.com.au/2024/12/02/long-covid-symptoms-viruses-health-labour-australia/

https://www.abc.net.au/news/2024-06-16/children-with-long-covid-dismissed-doctors-myth-virus-harmless/103959078

https://thesicktimes.org/2024/06/25/my-partner-and-i-both-have-long-covid-we-tread-the-underworld-together/

From the latest Science for ME weekly update

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @auscovid19 #auscovid19 @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Australia Emerge Australia Awards for Excellence in Journalism 2025
"to recognise and honour the exceptional journalists who are dedicated to enhancing media coverage of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID."
Announcement | Thread

Hayley Gleason writing for ABC News "The pandemic’s untold fertility story"
Jason Murphy writing for Crikey. "Long COVID is becoming a serious social and economic issue for Australia"
Hayley Gleason (Winner) writing for ABC News "Too many children with long COVID are suffering in silence. Their greatest challenge? The myth that the virus is 'harmless' for kids"
Felicity Nelson writing for The Sick Times "My partner and I both have Long Covid. We tread the underworld together."

**Tom Kindlon** @tomkindlon@disabled.social · Mar 23

**Tom Kindlon** @tomkindlon@disabled.social · Mar 20

Mar 20

Tom Kindlon @tomkindlon@disabled.social

Press release:
Long COVID could be costing U.S. $2.0-$6.5 billion annually

https://www.eurekalert.org/news-releases/1077514

Paper (not open access):
https://academic.oup.com/jid/advance-article-abstract/doi/10.1093/infdis/jiaf030/7972782

Comment: I think I have seen higher estimates. Still huge numbers

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

**Tom Kindlon** @tomkindlon@disabled.social · Mar 20

Mar 20

Tom Kindlon @tomkindlon@disabled.social

From Medscape (widely read by health professionals):

"What Not to Say to People With Complex Chronic Illness"

https://www.medscape.com/viewarticle/what-not-say-people-complex-chronic-illness-2025a10006ft
(may require free registration)

**Tom Kindlon** @tomkindlon@disabled.social · Mar 19

Mar 19

Tom Kindlon @tomkindlon@disabled.social

Evidence synthesis – Global prevalence of post-COVID-19 condition: a systematic review and meta-analysis of prospective evidence

https://www.canada.ca/en/public-health/services/reports-publications/health-promotion-chronic-disease-prevention-canada-research-policy-practice/vol-45-no-3-2025/global-prevalence-post-covid-19-condition-systematic-review-meta-analysis-prospective-evidence.html

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

HPCDP Journal
Evidence synthesis – Global prevalence of post-COVID-19 condition: a systematic review and meta-analysis of prospective evidence — Taher et al
"Our analysis revealed that more than half of COVID-19 survivors experienced one or more symptoms more than a year after their initial infection. The most common symptoms were fatigue; dyspnea; memory, sleep or concentration disturbances; depression; and pain. Limitation in returning to work was the most common outcome."

**Tom Kindlon** @tomkindlon@disabled.social · Mar 19

Mar 19

Tom Kindlon @tomkindlon@disabled.social

Press release for a new UK study:

"Nearly one in ten unsure if they have Long Covid. Almost 5% have the condition and socially disadvantaged groups are most affected"
https://www.eurekalert.org/news-releases/1076866

Free paper:
https://onlinelibrary.wiley.com/doi/10.1111/hex.70202

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

News Release 17-Mar-2025
Nearly one in ten unsure if they have Long Covid
Almost 5% have the condition and socially disadvantaged groups are most affected

Peer-Reviewed Publication
University of Southampton

Facebook X LinkedIn WeChat Bluesky Message WhatsApp Email
UNDER EMBARGO UNTIL 00:01 AM UK TIME ON TUESDAY 18 MARCH 2025

Almost one in ten people (9.1%) in England think they could have Long Covid but aren’t sure, according to a new analysis of NHS England survey data by the University of Southampton.

**Tom Kindlon** @tomkindlon@disabled.social · Mar 18

Mar 18

Tom Kindlon @tomkindlon@disabled.social

Unveiling the Immune Landscape of COVID-19 and prolonged Long-COVID through Single-Cell RNA Sequencing

https://www.biorxiv.org/content/10.1101/2025.03.05.641671v1

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Preprint: BioRxiv
Unveiling the Immune Landscape of COVID-19 and prolonged Long-COVID through Single-Cell RNA Sequencing — Marta Līva Spriņģe et al.
"Differentially expressed genes and the involvement of the innate immune system regulation, though widely documented in severe acute COVID-19 cases, may play a part in the development or persistence of Long-COVID, as highlighted by the outcomes of this investigation."

**Tom Kindlon** @tomkindlon@disabled.social · Mar 17

Mar 17

Tom Kindlon @tomkindlon@disabled.social

Five years of Long Covid

Links:
NBC News
https://www.nbcnews.com/health/health-news/5-years-later-long-covid-still-medical-mystery-scientists-learned-rcna195608

US News and World Report:
https://www.usnews.com/opinion/articles/2025-03-10/covid-pandemic-vaccines-measles

Rolling Stone:
https://www.rollingstone.com/culture/culture-features/long-covid-five-years-1235296375/

https://www.s4me.info/threads/news-from-the-usa-united-states-of-america.20771/page-36#post-593840

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

Five years of Long Covid

The five year anniversary of the start the COVID-19 pandemic has prompted several media outlets to publish stories on Long Covid.

NBC News: 5 years later, long Covid is still a medical mystery: What scientists have learned

US News and World Report: 5 Years Since the COVID-19 Pandemic, Millions Like Me Are Still Sick

Rolling Stone: Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid

More stories in this Thread

Continued thread

**Tom Kindlon** @tomkindlon@disabled.social · Mar 16

Mar 16

Tom Kindlon @tomkindlon@disabled.social

2/
Longer version of that extract:

"ME/CFS and PCC have similar, profound impacts on HRQoL [health-related quality of life] that warrant access to multidisciplinary disability and social support services."

#PASC #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid @covid19 @novid@chirp.social @novid@a.gup.pe @auscovid19 #LongCovid

**Tom Kindlon** @tomkindlon@disabled.social · Mar 14

Mar 14

Tom Kindlon @tomkindlon@disabled.social

From Cyprus:

Long-COVID from the perspective of neurologists at the outpatient clinic: A cross-sectional field study

https://www.tandfonline.com/doi/full/10.1080/01616412.2025.2472824

From the latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Neurological Research
Long-COVID from the perspective of neurologists at the outpatient clinic: A cross-sectional field study — Artemios Artemiadis et al.
"In this small cross-sectional study, our aim was to delineate the symptom patterns among Long-COVID patients referred to an outpatient Neurological clinic and assess their impact on psychological, sleep, and overall well-being. Fatigue emerged as the most frequently reported symptom, followed by anxiety, myalgias, and concentration difficulties."

Continued thread

**Tom Kindlon** @tomkindlon@disabled.social · Mar 14

Mar 14

Tom Kindlon @tomkindlon@disabled.social

2/
Extract from wild psychological speculation in the Irish Independent

"Dr Suzanne O’Sullivan examines the rise in recorded cases of autism, ADHD and long Covid, and how labels can bring new problems"

Paywall:
https://www.independent.ie/entertainment/books/book-reviews/adhd-is-a-business-as-well-as-a-medical-disorder-irish-doctor-on-the-dangers-of-overdiagnosis/a586398049.html

#LongCovid #PASC
@longcovid

It’s all part of the quest to find a “biological cause of human distress”, O’Sullivan says, acknowledging that the pathologising of mental health problems and behavioural disorders is a trend right now, both within medicine and society. “Diagnosis is subjective, a true art,” she writes, “and that makes it susceptible to mistakes, exploitation and social pressure.”
A glaring example is that of long Covid, a diagnosis that has been driven by the patient community. Efforts to explain long Covid as a consequence of viral pathology have all fallen short and the non-specific nature of its long list of associated symptoms clouds the picture even further. It is clear O’Sullivan thinks the condition is “problematic”, pointing out that one support group included “loneliness”, “feeling scared” and “skin ageing” on its symptoms list.
Dr Suzanne O’Sullivan: ‘We need to be more thoughtful before accepting labels that could lower our expectations for ourselves’
The evidence that a significant proportion of long Covid is psychosomatic in cause has built slowly, writes the expert in psychosomatic disorders. Here, she is saying the quiet part out loud, and one gets the sense she would be far more forthright with a more select audience.

**Tom Kindlon** @tomkindlon@disabled.social · Mar 14

Mar 14

Tom Kindlon @tomkindlon@disabled.social

Disappointing to see this individual getting more publicity, this time in the Irish Independent. I'm not aware of any peer-reviewed publications of hers on long Covid.

Paywall:
https://www.independent.ie/entertainment/books/book-reviews/adhd-is-a-business-as-well-as-a-medical-disorder-irish-doctor-on-the-dangers-of-overdiagnosis/a586398049.html

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

‘ADHD is a business as well as a medical disorder’: Irish doctor on the dangers of overdiagnosis
Dr Suzanne O’Sullivan examines the rise in recorded cases of autism, ADHD and long Covid, and how labels can bring new problems
people with symptoms of long Covid at a US congressional hearing in 2023. Dr O'Sullivan thinks the condition is "problematic". Photo Drew Angerer/Getty Images

**Tom Kindlon** @tomkindlon@disabled.social · Mar 13

Mar 13

Tom Kindlon @tomkindlon@disabled.social

From Iraq:

Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316373

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs

PLOS ONE
Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID — Wasim Talib Mahdi Al Masoodi et al.
"a sizable portion of the variation in the physioaffective phenome was accurately predicted by a combination of biomarkers, including GALGALR1 signaling, CRP, PGE2, and z PBT - z SpO2"

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