2/

“The field of ME/CFS is ripe for clinical trials,” Lipkin, who directs the center, told Fierce Biotech in a March 19 interview. “These cuts have brought our work to a dead halt.”

#PwME #MEcfs
@mecfs

Incidently, if you want to cure ALL cases of Long Covid, you also need to cure ME. You can't get away from that fact as much as you'd like to. 5/5 #mecfs #pwME #LongCovid

happening in many ME cases that have been caused by other viruses, or quite simply an EBV infection on it's own, if something else has caused this fault in the immune system. (just about everyone is invected with EBV, not many are sick with it) 4/5 #mecfs #pwME #LongCovid

like measles can wipe out immune memory, a Covid infection, in some, is damaging the immune system's ability to keep EBV suppressed/in it's latent state. And much of Covid caused ME's symptoms are caused by this, like what's quite possibly also 3/5 #mecfs #pwME #LongCovid

Now I don't think LC and ME are the same, but Covid derived ME is also without doubt a thing, in possibly over half of LC sufferers (I know that won't be popular take with some). My layperson's theory on this, would be... #mecfs #pwME #LongCovid 2/5

2/

"The major outcome of our analysis is the lack of significant differences in AAb levels between ME/CFS patients and controls"

"we found elevated reactivity against specific EBV and HSV1 surface antigens"

#MEcfs #CFS #PwME
@mecfs

4/
Volunteer in Norwegian ME Association:
“There are days or weeks when I can't do anything. Few employers will hire someone who disappears for an extended period of time due to illness. It makes it difficult to return to work, especially if you don't get better.”

#MEcfs #PwME
@mecfs

3/

“Many patient stories show that those who try to adapt to the labor market often experience relapse. Working life is largely not adapted for people with low and varying work capacity, says Trude Schei, assistant secretary general of the ME Association.”

#PwME #MEcfs
@mecfs

2/

“They see [in the research data] that very few of the patients were well enough to work again, even nine years after diagnosis. These are disappointing results, but unfortunately not particularly surprising.”

#MEcfs #PwME #CFS
@mecfs