#MutualAidRequest for Lydia, an autistic trans woman who suffers from chronic EDS. She was already struggling to pay the bills, and now her rent is going up significantly. She needs help affording August rent. Please boost!
$0/400
venmo and paypal are both: @lydiawilder0
Any amount helps! If you can only boost that is okay, you never know who may see this and be able to donate. 
Artist: Shen Comix but I changed words for chronic illness
7/9 #MutualAidRequest for Lydia, an autistic trans woman who suffers from chronic EDS. She was already struggling to pay the bills, and now her rent is going up significantly. 
She needs help affording August rent. Please boost!
$0/400
venmo and paypal are both: @lydiawilder0
Any amount helps! If you can only boost that is okay, you never know who may see this and be able to donate.
It's crazy how much of an overlap there is between AuDHD and EDS. There are so many "autistic zebras" out there!
How do you know if you've popped a rib "out of socket"?
I sneezed this morning and thought I pulled a muscle, but the pain is intense and hasn't let up all day. I started to wonder if it was something more when I sneezed again this evening, and there was a very clear popping sensation accompanied by even more intense pain. It's right around the area where my rib would meet the cartilage next to my sternum.
I've been unable to cough effectively all day long. Every cough, even a mild one, is super painful. Meanwhile, I feel like I'm suffocating or drowning because I can't clear my airway effectively.
If it is a dislocated rib, what do I do? How do I fix it or at least get the pain to ease up? How do I stop this from happening again?
#EhlersDanlos
#EhlersDanlosSyndrome
#EDS
#dislocation
#ChestPain
@eds
@hadon Yeah, h in hEDS is for hypermobile.
Back when I was on Twitter, I was actually mutuals with several EDS researchers, including the one who found the link between EDS and neurodivergence. Her study showed the chances of ASD for people with EDS is 7 times what it is for non-EDS folks, and a 5 times the base rate for ADHD.
#ADHD
#autism
#AuDHD
#EDS
#EhlersDanlos
#ActuallyAutistic
#AutisticZebra
Another day out with #phosh and the #OP6
- Woke up with #gnomeClocks 
- Looked up the address of the 
via #Firefox and its mobile config
- picked my way via #puremap's offline map feature
- Send #SMS via #Chatty
- Replied a toot via #tuba
- Listened to 
via #gapless
- Looked up the appointment time on #phosh's lockscreen 
plugin backed by #eds
- Checked 
pulse via a simple pacer up using #phosh's lancher plugin for the short 
No console needed.
#Documentary #ChronicallyIgnored
Only a few days left until June 20th. I would be very grateful for sharing, so that as many people as possible can be reached! Thank you so much for your support!
A Wake-Up Call To Politics, Medicine & Research
#POTS #SmallFiber #SIBO #Autoimmunity #MCAS #FQAD #FQToxicity #FlagylToxicity #EDS #hEDS #Marfan #CCI #LongCovid #LongLyme #VacInjury #LongList #LongTragedy
Film Link here: https://vimeo.com/ondemand/chronicallyignored
4/
“The researchers identified four broad categories of harm that clinicians’ symptom invalidation can lead to:…”
#DoctorPatientRelationship #Gaslighting #chronicillness #invisibleillness #mecfs #lupus #eds #fibromyalgia #ibs #longcovid #spoonies
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
Live stream - The invisible impact of COVID-19 on hypermobility syndromes and neurodivergence- bodies, brains and burnout
Royal Society of Medicine- July 11
Registration fee
#LongCovid #EDS #hypermobility
https://www.rsm.ac.uk/events/rheumatology-and-rehabilitation/2024-25/rrt52/
Please share this widely! 
The film "Chronically Ignored" will be available online for the first time internationally, starting Friday, June 6th, at 9 a.m (German Time). The link will be this one here:
https://vimeo.com/ondemand/chronicallyignored
"Chronically Ignored" is an investigative documentary about a dark chapter in the history of medicine.
1/
It's the people who've been there before who are still here. The people who still offer a call after I've canceled 100 times, the people who do nothing with me for an entire afternoon without judgement, the people who always thought I was worth it.
For the rest, I'm now fixed, get to start over the fight.
3/3
Esmee (24), die euthanasie wilde en niet kreeg, is overleden:
'Ze was sterker dan de wet.’
Esmee besloot zelf met eten en drinken te stoppen, toen ze geen euthanasie kreeg.
Ze leedt aan de zeldzame bindweefselaandoening EDS, maar die diagnose werd pas na 20 jaar gesteld. Toen kon ze al vrijwel niks meer:
Changed my bedsheets, finally. Yay but also boo. Was going to have a shower today but two things is too much for one day. #ChronicIllness sucks, esp if you're destitute. #fibro #mecfs #eds
I had a seizure on Saturday morning.
I've never had one before. My mom said I had one when I was little and got really mad. Who knows.
The best part about this was that I was on the toilet. Fell over and laid on the floor for about two hours. It took me a very long time to regain full consciousness.
I could have cracked my head open. I could be dead right now.
@SteveThompson there’s more, with insights https://www.qeios.com/read/ZPYS4F #eds
A friendly reminder to anyone who has Ehlers-Danlos or has joint hypermobility (aka "double-jointed"):
*****
Avoid the antibiotic Cipro like the plague.
*****
It can destroy your body. It weakens tendons and ligaments and makes them susceptible to abruptly bursting or snapping. The effects of the drug can be long-term. My brother took it and had to have major surgery to have a tendon reattached in his thumb. His story isn't nearly as horrible as others I have heard.
#EhlersDanlos
#EDS
#cipro
#joints
#hypermobility
#DoubleJointed
#antibiotics
#MedicalHorror
A cool thing about connective tissue disorders/arthritis is you hear from your skeleton a lot more
May is EDS awareness month in Massachusetts
https://ctdnewengland.org/2024/05/16/proclamation-for-eds-awareness-month-in-ma/
Cath 
