The uncertainty about incurable chronic illness future is one of the problematic issues in chronically ill people's life .
#chronicillness
#Disability
#LGMD
The uncertainty about incurable chronic illness future is one of the problematic issues in chronically ill people's life .
#chronicillness
#Disability
#LGMD
Long Covid research funding and grants terminated by Trump regime. They’ve declared them a “waste of time” because the pandemic is over:
“HHS is prioritizing funding projects that will deliver on President Trump’s mandate to address our chronic disease epidemic and Make America Healthy Again.”
400 million people have Long COVID. They’re suffering in silence with little hope of treatment and/or cures.
If HHS and Trump were actually interested in addressing the chronic disease epidemic, they would care about long COVID. They would try and reduce the spread of COVID.
When you hear “Make America Healthy Again” please consider HOW they plan to do that.
We’ve seen zero evidence that they will actually help those with chronic illness.
Fascists target the disabled. The Nazis literally tested the gas chambers on us. We are almost always first.
Perhaps they’re ending the chronic illness epidemic by ending the chronically ill? Don’t provide research, care, funding or treatment and the problem “goes away”?
Get loud. Call your elected officials. Tell them Covid is not over.
After 6 weeks of my bloodwork labs coming back in concern/precarious territory… my biweekly results from yesterday FINALLY look promising!!!! Things are trending in the right direction.
I am SO relieved.
We check again in 2 weeks, and if things are back to normal I might be able to start a new biologic for my RA around the beginning of May.
Hey #RFKJr, you say you want to study #ChronicIllness. Well, I have one! It was caused by #COVID19, and now you want to close the office that studies #LongCovid? Forgive the technical terminology, Mr. Secretary, but rot in hell. https://fed.brid.gy/r/https://bsky.app/profile/did:plc:flwgfsh2mhpoqwjwwt2mesjv/post/3ll6ah6wczk2s
The clinic is letting me pay at a later date! Still in need of $160 to cover it all. Meds are taken care of for the time being, this will cover the rest of the appointment. Please help, I need to be able to continue treatment to stay alive and healthy and be able to work on my game.
@mutualaid #MutualAidRequest #MutualAid #Disabled #TransCrowdfund #disability #DisabilityMutualAid #DisabilityCrowdfund #IndigenousMutualAid #ChronicIllness #HelpFolksLive2025 #lgbt #crowdfund #intersex #gameDev #crowdfund #ChronicIllness #Fundraiser
Can we get one more push on this? I need 160 dollars more for clinic and meds, tomorrow (Monday). EMERGENCY.
http://patreon.com/squirrellilly
#MutualAidRequest #MutualAid #Disabled #TransCrowdfund #disability #DisabilityMutualAid #DisabilityCrowdfund #IndigenousMutualAid #ChronicIllness #HelpFolksLive2025 #lgbt #crowdfund #intersex #gameDev #crowdfund #ChronicIllness #Fundraiser
In February I joined my annual Make-A-Thing-A-Day group that gathers on FB. I bought supplies and spent the month playing around with Zentangle tiles, neurographic art, and a new set of watercolor magic markers (which are the bomb!). All low energy and very manageable.
With the new meds and the progress I'm making, I hope to make it back to the pottery by summer, but until then, I'm having fun!
#Zentangle #NeurographicArt #lupus #doodling #chronicillness @chronicillness
We have only two days to get the rest of this money together. The clinic is ~$200 and meds are ~100.
Please help.
http://patreon.com/squirrellilly
@mutualaid #MutualAidRequest #MutualAid #Disabled #TransCrowdfund #disability #DisabilityMutualAid #DisabilityCrowdfund #IndigenousMutualAid #ChronicIllness #HelpFolksLive2025 #lgbt #crowdfund #intersex #gameDev #crowdfund #ChronicIllness #Fundraiser
#chronicillness #multiplesclerosis #ChronicFatigueSyndrome #notjustsad
Eine Handvoll Internetfunde
Nothing new since Thursday, please help, we only have a couple of days, I'm scared out of my wits. Still $307 needed
https://cathode.church/@squirrellilly/114193043480353141
@mutualaid #MutualAidRequest #MutualAid #Disabled #TransCrowdfund #disability #DisabilityMutualAid #DisabilityCrowdfund #IndigenousMutualAid #ChronicIllness #HelpFolksLive2025 #lgbt #crowdfund #intersex #gameDev #crowdfund #ChronicIllness #Fundraiser
Its always a good day to support #nativeArtist @mahtheyzhawey & her fam!
- https://ko-fi.com/mahtheyzhawey
- https://paypal.me/kiagbear
- https://cash.app/$kiagbear
- https://venmo.com/u/kiagbear
- #etsy https://www.etsy.com/shop/MahtheyzhaweyArts
- https://linktr.ee/mahtheyzhawey
@mutualaid
#IndigenousMutualAid #mutualAid #disabilityCrowdfund #CreativeNatives #settlerSaturday #MutualAidSavesLives #chronicIllness #DisabledArtist #HelpFolksLive2025 #MutualAidRequest #settlerSaturday