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#UCSF

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Public
(((Cindy Weinstein)))

It was an honor to be a panelist on #Dementia Stories for Impact: Dementia Life Course and Storytelling, sponsored by the #AlzheimersAssociation and #UCSF. My fellow authors and colleagues talked about the importance of #narrative, #empathy, #brain health, and Dr. Bruce Miller and I talked about our work together on my #memoir, Finding the Right Words: A Story of Literature, Grief, and the Brain. I hope you find this discussion helpful.

lnkd.in/g-mgqkkN

#EndAlz
#Caregiving

lnkd.inLinkedInThis link will take you to a page that’s not on LinkedIn
Public
(((Cindy Weinstein)))

It was an honor to be a panelist on #Dementia Stories for Impact: Dementia Life Course and Storytelling, sponsored by the #AlzheimersAssociation and #UCSF. My fellow authors and colleagues talked about the importance of #narrative, #empathy, #brain health, and Dr. Bruce Miller and I talked about our work together on my #memoir, Finding the Right Words: A Story of Literature, Grief, and the Brain. I hope you find this discussion helpful.

lnkd.in/g-mgqkkN

#EndAlz
#Caregiving

lnkd.inLinkedInThis link will take you to a page that’s not on LinkedIn
Public
(((Cindy Weinstein)))

February 21 was National Caregiver's Day. I was thinking about caregiving (in fact, speaking about it at #UCSF) but didn't post. Here is a photo of my mother and father, Tzip and Jerry, on their honeymoon. Both are gone. Many years of her life were dedicated to taking care of my father, who died of early-onset Alzheimer's. I love this photo.

#EndAlz
#Caregiving

Black and white photo of my mom and dad. Mom on the left with black v-neck t-shirt and plaid knicker pants sitting next to my dad whose arm is around hers.
Public
(((Cindy Weinstein)))

February 21 was National Caregiver's Day. I was thinking about caregiving (in fact, speaking about it at #UCSF) but didn't post. Here is a photo of my mother and father, Tzip and Jerry, on their honeymoon. Both are gone. Many years of her life were dedicated to taking care of my father, who died of early-onset Alzheimer's. I love this photo.

#EndAlz
#Caregiving

Black and white photo of my mom and dad. Mom on the left with black v-neck t-shirt and plaid knicker pants sitting next to my dad whose arm is around hers.
Public
(((Cindy Weinstein)))

On 2.21, please join me & #neurolgists Drs. Bruce Miller & LuisMartinez for a panel discussion on the value of sharing narratives re: #dementia's profound impact on those who know & love someone w/#Alzheimers, which is pretty much everyone. Bruce & I will talk about how we wrote Finding the Right Words: A Story of Literature, Grief, and the Brain, & Luis will discuss Pipo, Don't Forget Me. It is hosted by #UCSF & the Alzheimer's Association.

gbhi.org/events/narrative-show

#EndAlz
#caregiving

Global Brain Health InstituteGlobal Brain Health Institute | Narrative Showcase: Dementia Stories for ImpactStorytelling transports us into the lives of others. A story raises awareness and reaches across identities. A story creates connections and emphasizes areas for change. In discussions about dementia including the complexities of Alzheimer’s disease and other neurodegenerative conditions, the art of narrative is a powerful global tool. Join us for the second webinar in the Narrative Showcase: Dementia Stories for Impact series, titled: "Dementia, Life Course, and Storytelling." The webinar will highlight two approaches in narrative to bring attention and understanding about dementia. First, writing toward an adult audience through a personal narrative as a daughter and having the scientific context to understand the changes in her father’s brain in the book written by Cindy Weinstein and Bruce Miller, Finding the Right Words. Then, writing for a young audience of English- and Spanish-speaking children, and making the message accessible through a beloved animal’s point of view in the book written by Luis Martinez, Pipo, Don’t Forget Me. Both stories across the life course educate about dementia and advocate for empathy in the light of a debilitating disease. Their stories trace not just the challenges, but also the sparks of hope in the midst of dementia.ObjectivesWebinar participants will: Hear from authors in the neurosciences and the humanities who reach both adult and young audiences Understand their motivations to craft stories about the human experience and changes in the brainLearn how these stories amplify important messages of advocacy and awareness about neurologic health ModeratorsFionnuala Sweeney (Ireland), Journalist & Broadcaster -  Former Anchor/Correspondent with CNN International; Multimedia Editor, Atlantic Institute; Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI). Creator of podcast series, Dementia is Global.Oz Ismail, PhD, Director, Scientific Programs, Alzheimer's AssociationPanelistsBruce Miller, MD, Neurologist; Director, Memory and Aging Center, University of California San Francisco; Founding Director, Global Brain Health Institute; Co-Author, Finding the Right WordsCindy Weinstein, PhD, Professor of English, Caltech; Atlantic Fellow for Equity in Brain Health; Co-Author, Finding the Right WordsLuis Martinez, MD, Neurologist; Assistant Clinical Research Coordinator, Memory and Aging Center, University of California, San Francisco; Author, Pipo, Don’t Forget Me
Public *
(((Cindy Weinstein)))

On 2.21, please join me & #neurolgists Drs. Bruce Miller & LuisMartinez for a panel discussion on the value of sharing narratives re: #dementia's profound impact on those who know & love someone w/#Alzheimers, which is pretty much everyone. Bruce & I will talk about how we wrote together Finding the Right Words: A Story of Literature, Grief, and the Brain, & Luis will discuss Pipo, Don't Forget Me. It's hosted by #UCSF & the Alzheimer's Association.

gbhi.org/events/narrative-show

#EndAlz
#caregiving

Global Brain Health InstituteGlobal Brain Health Institute | Narrative Showcase: Dementia Stories for ImpactStorytelling transports us into the lives of others. A story raises awareness and reaches across identities. A story creates connections and emphasizes areas for change. In discussions about dementia including the complexities of Alzheimer’s disease and other neurodegenerative conditions, the art of narrative is a powerful global tool. Join us for the second webinar in the Narrative Showcase: Dementia Stories for Impact series, titled: "Dementia, Life Course, and Storytelling." The webinar will highlight two approaches in narrative to bring attention and understanding about dementia. First, writing toward an adult audience through a personal narrative as a daughter and having the scientific context to understand the changes in her father’s brain in the book written by Cindy Weinstein and Bruce Miller, Finding the Right Words. Then, writing for a young audience of English- and Spanish-speaking children, and making the message accessible through a beloved animal’s point of view in the book written by Luis Martinez, Pipo, Don’t Forget Me. Both stories across the life course educate about dementia and advocate for empathy in the light of a debilitating disease. Their stories trace not just the challenges, but also the sparks of hope in the midst of dementia.ObjectivesWebinar participants will: Hear from authors in the neurosciences and the humanities who reach both adult and young audiences Understand their motivations to craft stories about the human experience and changes in the brainLearn how these stories amplify important messages of advocacy and awareness about neurologic health ModeratorsFionnuala Sweeney (Ireland), Journalist & Broadcaster -  Former Anchor/Correspondent with CNN International; Multimedia Editor, Atlantic Institute; Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI). Creator of podcast series, Dementia is Global.Oz Ismail, PhD, Director, Scientific Programs, Alzheimer's AssociationPanelistsBruce Miller, MD, Neurologist; Director, Memory and Aging Center, University of California San Francisco; Founding Director, Global Brain Health Institute; Co-Author, Finding the Right WordsCindy Weinstein, PhD, Professor of English, Caltech; Atlantic Fellow for Equity in Brain Health; Co-Author, Finding the Right WordsLuis Martinez, MD, Neurologist; Assistant Clinical Research Coordinator, Memory and Aging Center, University of California, San Francisco; Author, Pipo, Don’t Forget Me
Public
(((Cindy Weinstein)))

Please join me for this #UCSF event, Dementia Stories for Impact. We'll be exploring the value of sharing stories of #dementia. How narratives combat #stigma, educate readers & #caregivers about #brain health, offer #empathy, & help others w/#grief. Dr. Bruce Miller & I will discuss the memoir we wrote in honor of my father, Jerry, who died of early-onset #Alzheimers, & Dr. Luis Martinez will discuss his children's book about dementia.

gbhi.org/events/narrative-show

#EndAlz
#Alzheimer'sAssociation

Global Brain Health InstituteGlobal Brain Health Institute | Narrative Showcase: Dementia Stories for ImpactStorytelling transports us into the lives of others. A story raises awareness and reaches across identities. A story creates connections and emphasizes areas for change. In discussions about dementia including the complexities of Alzheimer’s disease and other neurodegenerative conditions, the art of narrative is a powerful global tool. Join us for the second webinar in the Narrative Showcase: Dementia Stories for Impact series, titled: "Dementia, Life Course, and Storytelling." The webinar will highlight two approaches in narrative to bring attention and understanding about dementia. First, writing toward an adult audience through a personal narrative as a daughter and having the scientific context to understand the changes in her father’s brain in the book written by Cindy Weinstein and Bruce Miller, Finding the Right Words. Then, writing for a young audience of English- and Spanish-speaking children, and making the message accessible through a beloved animal’s point of view in the book written by Luis Martinez, Pipo, Don’t Forget Me. Both stories across the life course educate about dementia and advocate for empathy in the light of a debilitating disease. Their stories trace not just the challenges, but also the sparks of hope in the midst of dementia.ObjectivesWebinar participants will: Hear from authors in the neurosciences and the humanities who reach both adult and young audiences Understand their motivations to craft stories about the human experience and changes in the brainLearn how these stories amplify important messages of advocacy and awareness about neurologic health ModeratorsFionnuala Sweeney (Ireland), Journalist & Broadcaster -  Former Anchor/Correspondent with CNN International; Multimedia Editor, Atlantic Institute; Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI). Creator of podcast series, Dementia is Global.Oz Ismail, PhD, Director, Scientific Programs, Alzheimer's AssociationPanelistsBruce Miller, MD, Neurologist; Director, Memory and Aging Center, University of California San Francisco; Founding Director, Global Brain Health Institute; Co-Author, Finding the Right WordsCindy Weinstein, PhD, Professor of English, Caltech; Atlantic Fellow for Equity in Brain Health; Co-Author, Finding the Right WordsLuis Martinez, MD, Neurologist; Assistant Clinical Research Coordinator, Memory and Aging Center, University of California, San Francisco; Author, Pipo, Don’t Forget Me
Public
(((Cindy Weinstein)))

Please join me for this #UCSF event, Dementia Stories for Impact. We'll be exploring the value of sharing stories of #dementia. How narratives combat #stigma, educate readers & #caregivers about #brain health, offer #empathy, & help others w/#grief. Dr. Bruce Miller & I will discuss the memoir we wrote in honor of my father, Jerry, who died of early-onset #Alzheimers, & Dr. Luis Martinez will discuss his children's book about dementia.

gbhi.org/events/narrative-show

#EndAlz
#Alzheimer'sAssociation

Global Brain Health InstituteGlobal Brain Health Institute | Narrative Showcase: Dementia Stories for ImpactStorytelling transports us into the lives of others. A story raises awareness and reaches across identities. A story creates connections and emphasizes areas for change. In discussions about dementia including the complexities of Alzheimer’s disease and other neurodegenerative conditions, the art of narrative is a powerful global tool. Join us for the second webinar in the Narrative Showcase: Dementia Stories for Impact series, titled: "Dementia, Life Course, and Storytelling." The webinar will highlight two approaches in narrative to bring attention and understanding about dementia. First, writing toward an adult audience through a personal narrative as a daughter and having the scientific context to understand the changes in her father’s brain in the book written by Cindy Weinstein and Bruce Miller, Finding the Right Words. Then, writing for a young audience of English- and Spanish-speaking children, and making the message accessible through a beloved animal’s point of view in the book written by Luis Martinez, Pipo, Don’t Forget Me. Both stories across the life course educate about dementia and advocate for empathy in the light of a debilitating disease. Their stories trace not just the challenges, but also the sparks of hope in the midst of dementia.ObjectivesWebinar participants will: Hear from authors in the neurosciences and the humanities who reach both adult and young audiences Understand their motivations to craft stories about the human experience and changes in the brainLearn how these stories amplify important messages of advocacy and awareness about neurologic health ModeratorsFionnuala Sweeney (Ireland), Journalist & Broadcaster -  Former Anchor/Correspondent with CNN International; Multimedia Editor, Atlantic Institute; Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI). Creator of podcast series, Dementia is Global.Oz Ismail, PhD, Director, Scientific Programs, Alzheimer's AssociationPanelistsBruce Miller, MD, Neurologist; Director, Memory and Aging Center, University of California San Francisco; Founding Director, Global Brain Health Institute; Co-Author, Finding the Right WordsCindy Weinstein, PhD, Professor of English, Caltech; Atlantic Fellow for Equity in Brain Health; Co-Author, Finding the Right WordsLuis Martinez, MD, Neurologist; Assistant Clinical Research Coordinator, Memory and Aging Center, University of California, San Francisco; Author, Pipo, Don’t Forget Me
Public
(((Cindy Weinstein)))

"Whenever Linde tells a joke a little too loudly, or has a dulled emotional response to a dramatic event, she worries: Is this tau? That anxious metronome never shuts off."

The kindness, brilliance, and empathy of the #neurologists at the #Dementia #Research centers mentioned in this article is literally life-sustaining. A special shout-out to #UCSF and especially my dear friend #Dr.BruceMiller, who founded the #MAC (#Memory and #Aging Center).

nytimes.com/2024/12/22/health/

#EndAlz
#Caregiving

The New York Times · A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s FateBy Virginia Hughes
Public
(((Cindy Weinstein)))

"Whenever Linde tells a joke a little too loudly, or has a dulled emotional response to a dramatic event, she worries: Is this tau? That anxious metronome never shuts off."

The kindness, brilliance, and empathy of the #neurologists at the #Dementia #Research centers mentioned in this article is literally life-sustaining. A special shout-out to #UCSF and especially my dear friend #Dr.BruceMiller, who founded the #MAC (#Memory and #Aging Center).

nytimes.com/2024/12/22/health/

#EndAlz
#Caregiving

The New York Times · A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s FateBy Virginia Hughes
Public
(((Cindy Weinstein)))

The #MAGA candidate for the presidency can't find his words, can't speak them, and can't put them together coherently. Here is a figure from a book I wrote with #UCSF #neurologist Dr. Bruce Miller explaining the different kinds of aphasia. The 1st 2 #variants are associated w/#FTD. The 3rd & the one my father had is associated with #Alzheimer's. #Trump played music last night at his rally instead of speaking. Music can be a balm for people with #dementia. They often remember it when words fail.

Main differences among the 3 variants of Primary Progressive Aphasia. Clinical diagnosis and atrophy on MRI. Semantic Variant of PPA (impaired naming); nonfluent variant of PPA (fewer words); logopenic variant of PPA (word-finding pauses).
Public
(((Cindy Weinstein)))

The #MAGA candidate for the presidency can't find his words, can't speak them, and can't put them together coherently. Here is a figure from a book I wrote with #UCSF #neurologist Dr. Bruce Miller explaining the different kinds of aphasia. The 1st 2 #variants are associated w/#FTD. The 3rd & the one my father had is associated with #Alzheimer's. #Trump played music last night at his rally instead of speaking. Music can be a balm for people with #dementia. They often remember it when words fail.

Main differences among the 3 variants of Primary Progressive Aphasia (PPA). Clinical diagnosis and atrophy on MRI. Semantic variant of PPA (impaired naming et al.); nonfluent variant of PPA (fewer words et al); logopenic variant of PPA (word-finding pauses et al).
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