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#endalz

3 posts2 participants0 posts today
(((Cindy Weinstein)))<p>Research at <a href="https://zirk.us/tags/UCSF" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UCSF</span></a> linking <a href="https://zirk.us/tags/cancer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cancer</span></a> medicines with positive effects on Alzheimer's-damaged glia cells. Funded by <a href="https://zirk.us/tags/NIH" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NIH</span></a> and <a href="https://zirk.us/tags/NSF" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NSF</span></a>. The writers, implementors, and supporters of <a href="https://zirk.us/tags/Project2025" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Project2025</span></a> have lost access to these drugs that might mitigate the suffering that comes with these <a href="https://zirk.us/tags/diseases" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>diseases</span></a>. Too bad, they've limited our access, too. A pox on them.</p><p><a href="https://www.ucsf.edu/news/2025/07/430386/do-these-two-cancer-drugs-have-what-it-takes-beat-alzheimers?utm_source=UCSF&amp;utm_medium=LI&amp;utm_campaign=Alzheimers" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">ucsf.edu/news/2025/07/430386/d</span><span class="invisible">o-these-two-cancer-drugs-have-what-it-takes-beat-alzheimers?utm_source=UCSF&amp;utm_medium=LI&amp;utm_campaign=Alzheimers</span></a></p><p><a href="https://zirk.us/tags/USPol" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>USPol</span></a><br><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
(((Cindy Weinstein)))<p>I remember when I studied neurology for a year to write the <a href="https://zirk.us/tags/memoir" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>memoir</span></a>, with Dr. Bruce Miller, about my dad's early-onset Alzheimer's, a <a href="https://zirk.us/tags/neurologist" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>neurologist</span></a> said that sleep is when the brain takes out the garbage that accumulates during the day. My father had terrible problems with <a href="https://zirk.us/tags/sleep" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>sleep</span></a> and it was a harbinger of something very wrong. If you are having sleep difficulties, they may mean you need a CPAP; it may mean something else. But don't ignore it.</p><p><a href="https://www.yahoo.com/news/scientists-discovered-alzheimers-warning-sign-140000737.html" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">yahoo.com/news/scientists-disc</span><span class="invisible">overed-alzheimers-warning-sign-140000737.html</span></a></p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
(((Cindy Weinstein)))<p>On Wednesday, July 23rd from 5 pm to 6:30 pm, I will be leading a caregiver support group at Kensington Place in Redwood City. It is open to everyone. If you are in the area and would like a space to share your experiences of <a href="https://zirk.us/tags/caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregiving</span></a> for a loved one with <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> or listen to others', please RSVP and come. </p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
(((Cindy Weinstein)))<p>If you will be in the Redwood City, California area on July 23rd and want to come to an in-person discussion of <a href="https://zirk.us/tags/caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregiving</span></a>, <a href="https://zirk.us/tags/grief" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>grief</span></a>, and <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, I will be leading a conversation about these matters at the Kensington Redwood City. Here is the announcement with a link to the RSVP. </p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
(((Cindy Weinstein)))<p>On July 23 from 5:00 to 6:30, I will be at the Kensington Place in Redwood City talking about <a href="https://zirk.us/tags/caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregiving</span></a>, <a href="https://zirk.us/tags/grief" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>grief</span></a>, and <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>. All are welcome. You just need to RSVP at KensingtonPlaceRedwoodCity.com/events</p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
Ian Kremer<p><a href="https://mastodon.world/tags/Poetry" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Poetry</span></a> to raise awareness that even after death takes those most precious to us, they live on through our memories of love.</p><p><a href="https://mastodon.world/tags/grief" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>grief</span></a> <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimers</span></a> <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> <a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
Ian Kremer<p>The community of people facing <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimers</span></a> disease and related forms of <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> is heterogeneous. We need support, care, solutions, and respect for all. Our community is a safe space for all.</p><p><a href="https://mastodon.world/tags/diversity" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>diversity</span></a> <a href="https://mastodon.world/tags/health" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>health</span></a> <a href="https://mastodon.world/tags/StrongerTogether" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>StrongerTogether</span></a> <a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
(((Cindy Weinstein)))<p>This Wednesday at 11 PT, I'll be leading over Zoom "Keeping Each Other Company," a monthly <a href="https://zirk.us/tags/grief" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>grief</span></a> support group established by HFC, the <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimer</span></a>'s foundation w/a focus on <br><a href="https://zirk.us/tags/caregivers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregivers</span></a>, created by <a href="https://zirk.us/tags/LaurenMillerRogen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LaurenMillerRogen</span></a> &amp; <a href="https://zirk.us/tags/SethRogen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SethRogen</span></a>. Many other support groups are available, as well. Here is a google doc that you should fill out if you want and/or need some company:</p><p><a href="https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">docs.google.com/forms/d/e/1FAI</span><span class="invisible">pQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1</span></a></p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
Ian Kremer<p>A brilliant reminder to focus on the person, not solely the bodily maladies.</p><p><a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimers</span></a> <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> <a href="https://mastodon.world/tags/poetry" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>poetry</span></a> <a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
Ian Kremer<p>Deepest gratitude to every researcher striving to reach our shared dream of a world without <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimers</span></a> and other forms of <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>.</p><p><a href="https://mastodon.world/tags/hope" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>hope</span></a> <a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a> <a href="https://mastodon.world/tags/science" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>science</span></a> <a href="https://mastodon.world/tags/quote" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>quote</span></a></p>
(((Cindy Weinstein)))<p>Ladies and gentleman, meet the pro-dementia party. If Congress passes <a href="https://zirk.us/tags/Trump" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Trump</span></a>'s big, hideous bill, 96% of <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimer</span></a>'s research projects would have to be rejected. </p><p>If you know someone with <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, if you love someone with <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimer</span></a>'s, call your Congresspeople and tell them you have enough cognitive reserve to remember how they vote. </p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a> <br><a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Caregiving</span></a><br><a href="https://zirk.us/tags/USPol" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>USPol</span></a></p>
(((Cindy Weinstein)))<p>Honored that <a href="https://zirk.us/tags/HFC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>HFC</span></a> is highlighting this clip &amp; recommending my memoir: "If you’ve ever felt lost in the language of a dementia diagnosis, this one’s for you. 🧡📖 ‘Finding the Right Words’ by Cindy Weinstein is part memoir, part guide—created to help caregivers make sense of the medical terms &amp; complex realities that come with Alzheimer’s. A must-read for anyone looking to understand the emotional &amp; clinical sides of this disease."</p><p><a href="https://www.youtube.com/watch?v=EC9FxjqU_uk" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=EC9FxjqU_u</span><span class="invisible">k</span></a></p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a> <br><a href="https://zirk.us/tags/LaurenMillerRogen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LaurenMillerRogen</span></a> <br><a href="https://zirk.us/tags/SethRogen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SethRogen</span></a></p>
(((Cindy Weinstein)))Sad photo of Dad w/Alzheimer's
Ian Kremer<p>Learning from people who live with <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> expands our <a href="https://mastodon.world/tags/empathy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>empathy</span></a> and enables us to shed stigma, offer better support, and become stronger advocates.</p><p><a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimers</span></a> <a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
(((Cindy Weinstein)))<p>The Alzheimer's Association speaks out against <a href="https://zirk.us/tags/RFK" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RFK</span></a>'s dangerous, false, insulting, cruel statements: "On behalf of the over 7 million Americans living w/Alzheimer’s, the Alzheimer’s Association is calling on Sec. Kennedy to stop spreading these harmful Alzheimer’s myths, &amp; preserve the nation’s investment in Alzheimer’s research so we can accelerate, not stop, scientific progress on diagnosis, prevention, treatments, &amp; eventually cures."</p><p><a href="https://www.alz.org/news/2025/kennedy-harmful-myths-alzheimers-dementia-research" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">alz.org/news/2025/kennedy-harm</span><span class="invisible">ful-myths-alzheimers-dementia-research</span></a></p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a> <br><a href="https://zirk.us/tags/NIH" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NIH</span></a><br><a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Caregiving</span></a></p>
(((Cindy Weinstein)))<p>Reposting this important article about Dale Bredesen's unscientific claims, which have made him a great deal of $, about his protocol being able to reverse <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimer</span></a>'s. Better to heed experts like Bruce Miller &amp; Mario Carillo. Also, yes, to the Mediterranean diet and no to social isolation; yes to hearing aids and no to all nighters; yes to exercise, good sleep, anti-depressants as needed and no to a concoction whose main ingredient is false hope.</p><p><a href="https://www.nytimes.com/2025/05/21/well/alzheimer-symptoms-reversal-dale-bredesen.html?unlocked_article_code=1.I08.WxVs.liUX8iUqhQSs&amp;smid=url-share" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nytimes.com/2025/05/21/well/al</span><span class="invisible">zheimer-symptoms-reversal-dale-bredesen.html?unlocked_article_code=1.I08.WxVs.liUX8iUqhQSs&amp;smid=url-share</span></a></p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a> <br><a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Caregiving</span></a></p>
(((Cindy Weinstein)))<p><span class="h-card" translate="no"><a href="https://convo.casa/@Caiotekit" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>Caiotekit</span></a></span> </p><p>If you ever want to connect about how things are going, I'm here. Sometimes, weirdly, talking to strangers can be easier.</p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
(((Cindy Weinstein)))<p>Here is a review of my <a href="https://zirk.us/tags/memoir" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>memoir</span></a> about my father's early-onset <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Alzheimer</span></a>'s &amp; the unbearable grief of watching a loved one die of <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>. <a href="https://zirk.us/tags/Neurologist" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neurologist</span></a> Dr. Bruce Miller wrote it w/me &amp; explains the brain health (or sickness) behind the clinical presentations I saw: word-finding difficulties, spatial disorientation, behavioral anomalies, memory loss. The 1st chapter is on diagnosis. If this resonates, I am sorry. Readers have said the book has helped. <a href="https://bookshop.org/shop/WeAreHFC" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">bookshop.org/shop/WeAreHFC</span><span class="invisible"></span></a> </p><p><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a><br><a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Caregiving</span></a></p>
(((Cindy Weinstein)))<p>The Doctor's Bookshelf (a blog of books every doctor should read, courtesy of Dr. Ibrahim Imam) lists Finding the Right Words: A Story of Literature, Grief, and The Brain, written by me and <a href="https://zirk.us/tags/UCSF" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UCSF</span></a> <a href="https://zirk.us/tags/Neurologist" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neurologist</span></a> Dr. Bruce Miller, as one of the Ten Incredibly Moving Patient <a href="https://zirk.us/tags/Memoirs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Memoirs</span></a> about the Brain. </p><p><a href="https://thedoctorsbookshelf.com/2023/02/11/the-most-incredibly-moving-patient-memoirs-about-the-brain/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">thedoctorsbookshelf.com/2023/0</span><span class="invisible">2/11/the-most-incredibly-moving-patient-memoirs-about-the-brain/</span></a></p><p><a href="https://zirk.us/tags/Neurology" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neurology</span></a> <br><a href="https://zirk.us/tags/Caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Caregiving</span></a> <br><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>
(((Cindy Weinstein)))<p>This Wednesday, May 21 from 11 to 12 PT, I'll be leading the monthly <a href="https://zirk.us/tags/HFC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>HFC</span></a> caregiver group on <a href="https://zirk.us/tags/grief" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>grief</span></a>. It's called "Keeping Each Other Company." If you are a <a href="https://zirk.us/tags/caregiver" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregiver</span></a> for someone with <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, or if you aren't but feel the grief of losing someone about whom you care, please join. Here is the google doc to sign up and get matched with the caregiver group that best fits what you need. It may be the one I lead, it may not. Either way, it may help.💜 </p><p><a href="https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">docs.google.com/forms/d/e/1FAI</span><span class="invisible">pQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1</span></a></p><p><a href="https://zirk.us/tags/caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregiving</span></a><br><a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndAlz</span></a></p>