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#endalz

3 posts3 participants1 post today
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(((Cindy Weinstein)))

Honored that #HFC is highlighting this clip & recommending my memoir: "If you’ve ever felt lost in the language of a dementia diagnosis, this one’s for you. 🧡📖 ‘Finding the Right Words’ by Cindy Weinstein is part memoir, part guide—created to help caregivers make sense of the medical terms & complex realities that come with Alzheimer’s. A must-read for anyone looking to understand the emotional & clinical sides of this disease."

youtube.com/watch?v=EC9FxjqU_u

#EndAlz
#LaurenMillerRogen
#SethRogen

YouTubeCindy Weinstein on Dementia LanguageBy Hilarity for Charity (HFC)
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(((Cindy Weinstein)))

The Alzheimer's Association speaks out against #RFK's dangerous, false, insulting, cruel statements: "On behalf of the over 7 million Americans living w/Alzheimer’s, the Alzheimer’s Association is calling on Sec. Kennedy to stop spreading these harmful Alzheimer’s myths, & preserve the nation’s investment in Alzheimer’s research so we can accelerate, not stop, scientific progress on diagnosis, prevention, treatments, & eventually cures."

alz.org/news/2025/kennedy-harm

#EndAlz
#NIH
#Caregiving

Alzheimer’s AssociationContrary to Clear, Verifiable Facts, Secretary Kennedy Continues to Repeat Harmful Myths About Alzheimer’s and Dementia ResearchThe Alzheimer's Association calls on HHS Secretary Kennedy to stop dangerous fabrications about the state of Alzheimer’s and dementia research.
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(((Cindy Weinstein)))

Reposting this important article about Dale Bredesen's unscientific claims, which have made him a great deal of $, about his protocol being able to reverse #Alzheimer's. Better to heed experts like Bruce Miller & Mario Carillo. Also, yes, to the Mediterranean diet and no to social isolation; yes to hearing aids and no to all nighters; yes to exercise, good sleep, anti-depressants as needed and no to a concoction whose main ingredient is false hope.

nytimes.com/2025/05/21/well/al

#EndAlz
#Caregiving

After Kerry Briggs, 64, was diagnosed with Alzheimer’s disease, she told her husband that she wanted to enroll in a clinical trial to help others. When she was rejected, she signed up for an unconventional lifestyle program called “Recode” instead.
The New York Times · An Expensive Alzheimer’s Lifestyle Plan Offers False Hope, Experts SayBy Lindsay Gellman
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(((Cindy Weinstein)))

Here is a review of my #memoir about my father's early-onset #Alzheimer's & the unbearable grief of watching a loved one die of #dementia. #Neurologist Dr. Bruce Miller wrote it w/me & explains the brain health (or sickness) behind the clinical presentations I saw: word-finding difficulties, spatial disorientation, behavioral anomalies, memory loss. The 1st chapter is on diagnosis. If this resonates, I am sorry. Readers have said the book has helped. bookshop.org/shop/WeAreHFC

#EndAlz
#Caregiving

5.0 out of 5 stars Powerfully relates a human experience and should be read by anyone and everyone Weinstein has penned a raw and poignant memoir that processes, reflects, and reprocesses her father’s experience with early-onset Alzheimer’s disease. Decades after her beloved father’s passing, Cindy Weinstein, a literature professor, connects with Bruce Miller, a dementia neurologist. As such, the writings of Weinstein and Miller are interleaved within each chapter, which provides the reader a fascinating juxtaposition of the inner minds of a literature professor and an eminent neurologist as they share their distinct perspectives on Jerry’s illness. Weinstein writes with her mind wide open, like the pages of one’s intimate diary, showing incredible strength and vulnerability as she reflects and reconsiders the past. Miller writes clearly and compassionately, and not only provides an understandable scientific background to Jerry’s symptoms and situations, but also the historical context of the understanding of dementia. This unique and powerful book relates a universal human experience and should be read by anyone and everyone.
Public
(((Cindy Weinstein)))

This Wednesday, May 21 from 11 to 12 PT, I'll be leading the monthly #HFC caregiver group on #grief. It's called "Keeping Each Other Company." If you are a #caregiver for someone with #dementia, or if you aren't but feel the grief of losing someone about whom you care, please join. Here is the google doc to sign up and get matched with the caregiver group that best fits what you need. It may be the one I lead, it may not. Either way, it may help.💜

docs.google.com/forms/d/e/1FAI

#caregiving
#EndAlz

Google DocsHFC Online Support Group Interest FormThanks for your interest in joining one of HFC's Online Support Groups! This unique opportunity is for caregivers of loved ones living with Alzheimer's disease and related dementias. HFC's groups are led by credentialed social workers and trained group leaders who have experience supporting dementia family caregivers. HFC support groups are FREE and most groups meet weekly. We will do our best to match you based on your availability and the information you provide below. It can take up to three weeks to fulfill your request so we thank you for your patience. PLEASE NOTE: DUE TO THE VOLUME OF REQUESTS, COMMUNICATIONS FROM HFC ARE THROUGH EMAIL! PLEASE CHECK YOUR SPAM/JUNK BOX FOR HFC EMAILS SO WE DON'T MISS YOU. If you have any questions, don't hesitate to contact us - care@wearehfc.org Para completar este formulario en español, haga clic aquí.
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(((Cindy Weinstein)))

#3GoodThings

1. Seth Rogen spoke up for science to the techbros whose $ supports an autocracy dedicated to the evisceration of research that makes our lives better by alleviating suffering. Zuckerberg, Bezos et al were there to celebrate the Breakthrough Prize, & Rogen called them out on their bad, bad faith. #Hero

2. I moderated a grief support group for the Rogens' foundation, HFC. The meeting helped some people who were having a hard time. #EndAlz

3. This bougainvillea #Bloomscrolling

saturated pink bougainvillea with a white rose bush in front of it with a lavender rose bush in front of that.
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(((Cindy Weinstein)))

The "prodromal" phase of #Alzheimer's can last 15-20 years; that is, the brain is being invaded -- slowly -- before clinical presentations appear (for example, word-finding; memory; spatial disorientation). Check out this explanation of a new blood test whose predictive accuracy seems extraordinary. @erictopol also discusses the benefits of intervening early and addressing #modifiableriskfactors .

Thank you @cobalt for directing me to this article.

erictopol.substack.com/p/the-b

Ground Truths · The Breakthrough Blood Test for Alzheimer's DiseaseBy Eric Topol
#EndAlz
Public
(((Cindy Weinstein)))

Keeping Each Other Company is the monthly grief support group I lead, thanks to #HFC (Lauren Miller Rogen and Seth Rogen's foundation established in honor of Lauren's mother who died of early-onset Alzheimer's). We meet next week. If you are or were a #caregiver to someone w/#dementia & would like a space to share your feelings &/or hear others' share theirs, please use this google doc & HFC will match you with the group that fits your needs best.

#EndAlz
#Caregiving

docs.google.com/forms/d/e/1FAI

Google DocsHFC Online Support Group Interest FormThanks for your interest in joining one of HFC's Online Support Groups! This unique opportunity is for caregivers of loved ones living with Alzheimer's disease and related dementias. HFC's groups are led by credentialed social workers and trained group leaders who have experience supporting dementia family caregivers. HFC support groups are FREE and most groups meet weekly. We will do our best to match you based on your availability and the information you provide below. It can take up to three weeks to fulfill your request so we thank you for your patience. PLEASE NOTE: DUE TO THE VOLUME OF REQUESTS, COMMUNICATIONS FROM HFC ARE THROUGH EMAIL! PLEASE CHECK YOUR SPAM/JUNK BOX FOR HFC EMAILS SO WE DON'T MISS YOU. If you have any questions, don't hesitate to contact us - care@wearehfc.org Para completar este formulario en español, haga clic aquí.
Public
(((Cindy Weinstein)))

Keeping Each Other Company is the monthly grief support group I lead, thanks to #HFC (Lauren Miller Rogen and Seth Rogen's foundation established in honor of Lauren's mother who died of early-onset Alzheimer's). We meet next week. If you are or were a #caregiver to someone w/#dementia & would like a space to share your feelings &/or hear others' share theirs, please use this google doc & HFC will match you with the group that fits your needs best.

#EndAlz
#Caregiving

docs.google.com/forms/d/e/1FAI

Google DocsHFC Online Support Group Interest FormThanks for your interest in joining one of HFC's Online Support Groups! This unique opportunity is for caregivers of loved ones living with Alzheimer's disease and related dementias. HFC's groups are led by credentialed social workers and trained group leaders who have experience supporting dementia family caregivers. HFC support groups are FREE and most groups meet weekly. We will do our best to match you based on your availability and the information you provide below. It can take up to three weeks to fulfill your request so we thank you for your patience. PLEASE NOTE: DUE TO THE VOLUME OF REQUESTS, COMMUNICATIONS FROM HFC ARE THROUGH EMAIL! PLEASE CHECK YOUR SPAM/JUNK BOX FOR HFC EMAILS SO WE DON'T MISS YOU. If you have any questions, don't hesitate to contact us - care@wearehfc.org Para completar este formulario en español, haga clic aquí.
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