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#disabilitymatters

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Here are some photos and video from Tuesday’s Disability Pride Flag raising in Brimbank; a powerful and history making moment. For the first time ever in Victoria, the Disability Pride Flag was raised, marking a big step forward in visibility, recognition, and celebration of our community.

Huge thanks to Mayor Thuy Dang and Councillors Daniel Kruk, Joh Bauch, Virginia Tachos, Duyen Anh Pham, and Kim Thien Truong for showing up and and standing with us in solidarity.

Much appreciation to DRC Advocacy, Accessible Victorian Greens, Brimbank City Council, and Larissa MacFarlane for organising and sponsoring this historical event.

youtu.be/0aylKeAj8p8

youtu.be- YouTubeEnjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

😡😡😡 The petty dictator on call moron asshole doc tonight refuses to clear me for a Tylenol and a Benedryl. Fucking asshole. Soul crusher. Even though I've been taking both daily. Apparently the correct evening dose was never input for evening. ALL the other nurses just give it, so I didn't even know it wasn't on record, until tonight's temp nurse. A Benedryl and a Tylenol. Utterly ridiculous.

💞⚕️💞 APPEALING TO YOU FOR HELP! 💞⚕️💞

It can be a rough road, disability plus poverty. Right now, I truly need your help...

🏥 Medical supplies not covered by Medicaid, especially Curist Lidocaine (1, 3, 6 packs), etc. - Amazon

🏥 Supplemental healthy groceries - DoorDash or suprise me

🏥 Cash for expensive prescription ($200), clothing cleaned - GoFundMe, PayPal, Zelle, snail mail

Details in link. Thank you greatly! 🙏♥️🙏

CLICK HERE! 👉👉👉 mailchi.mp/af647449c7f3/the-co

💞⚕️💞 NEED HELP! 💞⚕️💞

It can be a rough road, disability plus poverty. Right now, I truly need your help...

🏥 Medical supplies not covered by Medicaid, especially Curist Lidocaine (1, 3, 6 packs), etc. - Amazon

🏥 Supplemental healthy groceries - DoorDash or suprise me

🏥 Cash for expensive prescription ($200), clothing cleaned - GoFundMe, PayPal, Zelle, snail mail

Details in link. Thank you greatly! 🙏♥️🙏

CLICK HERE! 👉👉👉 mailchi.mp/af647449c7f3/the-co

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💞✍️💞 FOR YOUR READING PLEASURE! 💞✍️💞

Click through for a nifty little slide show video I put together just for you - it has glitches but go easy on me, it's my first one. 😊

Also there's a link about Nobel Laureate Geoffrey Hinton, and his prognosis for AI - some good, some scary.

Lastly, my plea for your financial support, sorely needed. 🙏♥️

👉👉👉 CLICK HERE! 👉👉👉 mailchi.mp/af647449c7f3/the-co.

🙏💕🙏 Mastodonian, whoever you are, thank you SO MUCH for this lidocaine!! Your gift fills me with joy... It means NO WOUND PAIN for the next several weeks YAY!! Whoever you are, many blessings for your generosity. 🥰🙏💕

For anyone else in a position to help, here is the link to donate for food, medical supplies (scroll down to green box). Thank you, my beautiful Mastodon community!

us18.campaign-archive.com/?e==

#DisabilityMatters #Healthcare #Spirituality #NearDeathExperience #Knitting @Knitting

🧶🧶🧶 In case you missed it, check out "amuse bouche" link at end - Knitting becomes porcelain. So cool! And, if you are able to contribute, now would be a perfect time... Am in desperate need of medical supplies ex. Lidocaine and Emergen-C (see Amazon link). Thank you for your generosity! 💞🙏💞

#DisabilityMatters #Healthcare #Spirituality #NearDeathExperience #Knitting @Knitting #Knitstodon #FiberArts #FibreArts #NeedleArts #Maker #Creator #Crafts #HandMade

us18.campaign-archive.com/?e==

🌊🌊🌊 I had an NDE (Near Death Experience), read all about it! Also, please do donate if able, it is greatly needed - especially for lidocaine and Emergen-C via the Amazon link. Thank you! 🙏💕

"There is more - What happened next was absolutely extraordinary. Life altering. From way, way back in the field to the left, a massive wave of PURE LOVE rushed towards me, a ginormous tornado of energy..."

mailchi.mp/67f801d88fd4/thatnd

#DisabilityMatters
#Healthcare
#Spirituality
#NearDeathExperience

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@sunumbral

Here comes TMI!!

Yes pred is a bit of a beast. My body doesn't make enough cortisol, due to an injury to brain from a pituitary tumor. Am seeking the ideal therapeutic dose, aka the "sweet spot"... somewhere around 10-12mgs. The closer I get, the slower I have to go.

Trouble is, when I get sick (am usually hospitalized), must double++ my steroids. Then start taper again, takes me 3-4 weeks. This time I tried to speed it up. Lesson learned! 😊

#DisabilityMatters
#Spoonies

Here I am! Smile on my face under that mask. 😊

Pharmaceutical situation - Sharp steroid titration down. Must take in some capacity to stay alive (treats Secondary Adrenocortical Insuffiency and NTBI).

Apparently not enough! Went 20mg prednisone > 17mg, been symptomatic all day. Thing is, it's hard to realize sometimes. Ex. Just clicked for me now - nodding off, weakness, fatigue, stomach ache, respiratory, painful joints.

Just a little window into my disability!

#DisabilityMatters
#Spoonies