This brought to you by learning today that I'll have four weeks to potentially find and see a new care team, get them to issue a new script to a new pharmacy benefit provider, get pre-approval for Skyrizi from said pharmacy provider, and get the med delivered by a new specialty pharmacy.
But I can't even find out yet if my doctors are in network with the new plan or if the benefits will even consider covering Skyrizi. So that's exciting.
If we ever buy a place I am tiling the entire bathroom.
I have to bleach everything when we get home from the buttscoping.
GIs wouldn’t prescribe a double suprep if they had to clean up after it.
Wow!
Linking a particular bacteria of the gut microbiome in a chain that could potentially be a source of major depression. Follow up research could also show how environmental contaminants combined with the metabolism of the gut microbiome could be linked to autoimmune and other conditions.
Science is amazing!
Can't wait to see where this drives other future research and, eventually, treatments.
https://hms.harvard.edu/news/drawing-line-gut-microbiome-inflammation-depression
@OldAndCranky
I’m not diabetic (but I am heavier than I’d like to be) but I have had a chronic inflammatory disease all my life (#crohns), and several major surgeries. For no apparent reason the CD has been in remission the past 20+ years or so.
Still feel like shit coming off steroids. 3 more days of 30mg, then 20, 15 and 5 for a week each. Don’t have much faith in previously shite version of ‘normal’ being resumed after that tbh. Thoroughly scunnered wi it. Feeling jittery and shaky, tired no matter how much I nap in the day due to hourly peeing overnight. #crohns #autoimmune #ckd #kidneydisease #chronicillness #fatigue
@RickiTarr
Several friends over the years with #crohns went the full #disabilty route, getting SSI. Other friends with it soldiered on, had careers, families, the whole enchilada. Somehow the (imagined?) stigma of a label seemed to be a deterrent for a lot of us.
@RickiTarr
I’ve had #crohns all my life (mis-diagnosed until age 19). Worst was in my 20s. Pain, diarrhea, fatigue, hospitals, several surgeries, depression, all severe. It’s been “controlled” since age 30. Even at the worst I resisted the idea of “disabled”, for no good reason really. It’s just what I learned to do. I was never “that bad”, even tho in retrospect, yes, I was. Managed to survive to my 70s so far. Just never wanted to make a big deal about it. I guess we just do the best we can.
Bowel disease breakthrough as researchers make ‘holy grail’ discovery - https://www.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway yet more exciting science stuff #ibs #crohns
@byteseu
Seeing as how it’s been 56 years since I was diagnosed I guess I’m overdue. We #crohnies also have a 10% increased chance of getting bowel cancer, and it goes up another percent or so every year. Maybe I’m just lucky. Good times. #crohns #crohnsDisease
While I love #Ontario's healthcare system & have been well cared for through a chronic illness & 3 cesarean births with very little out of pocket... it sure can be infantilizing sometimes. Prescription drugs are rightfully given in limited amounts, but refills are gated behind forcing you to go back to your specialist.
Even this anti-inflammatory I've taken for over a decade (I have #Crohns Disease) is being kept from me. Gee thanks for the 4 day supply. 
Happy New Year, 2023 was good to me, health-wise. I pray 2024 may be good for you, especially if you suffer from chronic health issues! #ibd #ostomy #crohns #HappyNewYear
It is a good evening when I write the following sentence non-sarcastically:
"Signs of emergency blows that could not be prevented, without the accuracy necessary to reach the toilet waters."
It's #colonoscopy week for me.
What are your favorite low fiber, bland, easy-to-digest meals to help get the colon ready? I've got the standard doc list. Just looking to see what others like to do to get ready.
This is my sixth or seventh (I've lost track).
Given up on the NHS for diagnosis.
Their immune system tests are terrible and they refuse access to the pet scanners. This is the #only# way to diagnose many.
It's truly impossible.
So I travel to Turkey to buy more steroids and immuno suppressants myself.
I've wasted 2.5yrs of health waiting for a decent doctor.
It's a tyranny of ignorance that gatekeeps diagnosis/prevents us getting medication.
:Verified: 
