There is something weirdly hypnotic watching the stock market (and therefore my pension) crash in real time, whilst waiting for a blood test at the hospital that is at least 3 months late
There is something weirdly hypnotic watching the stock market (and therefore my pension) crash in real time, whilst waiting for a blood test at the hospital that is at least 3 months late
Infusion for #MultipleSclerosis is officially done! And this time I got smart and took a couple days off so I don’t wind up in urgent care again. Woohoo!!! No more treatments for six months. Just an MRI and neuro appointment between treatments. #rituximab #FuckMS #rituxan
Waiting to start my infusion still. Took the premeds, checked in, paid my copay… now I’m just sitting. Sent my partner away. No need for both of us to be bored in a waiting room. #fuckMS #MultipleSclerosis
MS is highly prevalent in people in the #PNW so even if you don’t think you know anyone with MS, you probably do. #MSAwareness #MultipleSclerosis #FuckMS
4/4
Today I get to talk to my neurologist about my MRI results, get whatever labs they assign and assess my current treatment. With two new lesions showing in my #MRI I have no idea what to expect.
#MSAwareness #MultipleSclerosis #FuckMS
3/4
This month marks nine years from the bout of optic neuritis that led to diagnosis. There is no cure for MS and every day of living with it is different. I’m lucky in that I currently go long periods of time without relapses. Not everyone is so lucky. And there’s no guarantee that my luck will hold.
#MultipleSclerosis #MSAwareness #FuckMS
2/4
March is #MultipleSclerosis Awareness Month and boy am I aware right now. How many doctor’s office fish tanks have I sat in front of throughout my life?
MS is a neurological condition where your own immune system attacks the myelin sheaths that protect your nerves. It can manifest for folks in any number of ways. For me, it has presented itself as optic neuritis, vertigo that lasts for weeks on end, intense numbness and tingling and pain from my rib cage down and more. #MSAwareness #FuckMS 1/4
Fuck. My #MRI shows new lesions. I hate #MultipleSclerosis so much. I’m so disappointed right now. #FuckMS