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#fuckms

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Man Of Rust<p>There is something weirdly hypnotic watching the stock market (and therefore my pension) crash in real time, whilst waiting for a blood test at the hospital that is at least 3 months late 🙄</p><p><a href="https://spoonie.community/tags/fuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fuckMS</span></a><br><a href="https://spoonie.community/tags/retirement" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>retirement</span></a></p>
Time Isn’t Real Croosh<p>Infusion for <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MultipleSclerosis</span></a> is officially done! And this time I got smart and took a couple days off so I don’t wind up in urgent care again. Woohoo!!! No more treatments for six months. Just an MRI and neuro appointment between treatments. <a href="https://pnw.zone/tags/rituximab" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rituximab</span></a> <a href="https://pnw.zone/tags/FuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FuckMS</span></a> <a href="https://pnw.zone/tags/rituxan" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rituxan</span></a></p>
Time Isn’t Real Croosh<p>Waiting to start my infusion still. Took the premeds, checked in, paid my copay… now I’m just sitting. Sent my partner away. No need for both of us to be bored in a waiting room. <a href="https://pnw.zone/tags/fuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fuckMS</span></a> <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MultipleSclerosis</span></a></p>
Time Isn’t Real Croosh<p>I have my twice yearly <a href="https://pnw.zone/tags/rituximab" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rituximab</span></a> infusion for MS tomorrow. I’ve loaded up on snacks and I’m gonna charge my Switch, grab a book and download some tv. I’m lowkey stressed about it. Writing codes at the Co-Op backwards and shit. <br>Last 2x I ended up in urgent care because the directions about getting checked out for issues after infusion are pretty scary. Here’s to me knowing what to expect and not having issues this time! <a href="https://pnw.zone/tags/rituxan" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rituxan</span></a> <a href="https://pnw.zone/tags/pwms" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pwms</span></a> <a href="https://pnw.zone/tags/fuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fuckMS</span></a></p>
Time Isn’t Real Croosh<p>MS is highly prevalent in people in the <a href="https://pnw.zone/tags/PNW" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PNW</span></a> so even if you don’t think you know anyone with MS, you probably do. <a href="https://pnw.zone/tags/MSAwareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MSAwareness</span></a> <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MultipleSclerosis</span></a> <a href="https://pnw.zone/tags/FuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FuckMS</span></a> <br>4/4</p>
Time Isn’t Real Croosh<p>Today I get to talk to my neurologist about my MRI results, get whatever labs they assign and assess my current treatment. With two new lesions showing in my <a href="https://pnw.zone/tags/MRI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MRI</span></a> I have no idea what to expect. <br><a href="https://pnw.zone/tags/MSAwareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MSAwareness</span></a> <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MultipleSclerosis</span></a> <a href="https://pnw.zone/tags/FuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FuckMS</span></a><br>3/4</p>
Time Isn’t Real Croosh<p>This month marks nine years from the bout of optic neuritis that led to diagnosis. There is no cure for MS and every day of living with it is different. I’m lucky in that I currently go long periods of time without relapses. Not everyone is so lucky. And there’s no guarantee that my luck will hold. <br><a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MultipleSclerosis</span></a> <a href="https://pnw.zone/tags/MSAwareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MSAwareness</span></a> <a href="https://pnw.zone/tags/FuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FuckMS</span></a> <br>2/4</p>
Time Isn’t Real Croosh<p>March is <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MultipleSclerosis</span></a> Awareness Month and boy am I aware right now. How many doctor’s office fish tanks have I sat in front of throughout my life? <br>MS is a neurological condition where your own immune system attacks the myelin sheaths that protect your nerves. It can manifest for folks in any number of ways. For me, it has presented itself as optic neuritis, vertigo that lasts for weeks on end, intense numbness and tingling and pain from my rib cage down and more. <a href="https://pnw.zone/tags/MSAwareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MSAwareness</span></a> <a href="https://pnw.zone/tags/FuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FuckMS</span></a> 1/4</p>
Time Isn’t Real Croosh<p>Fuck. My <a href="https://pnw.zone/tags/MRI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MRI</span></a> shows new lesions. I hate <a href="https://pnw.zone/tags/MultipleSclerosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MultipleSclerosis</span></a> so much. I’m so disappointed right now. <a href="https://pnw.zone/tags/FuckMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FuckMS</span></a></p>