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#mcas

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Barefoot Rambling<p>Any of my fellow late-realized <a href="https://autistics.life/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ActuallyAutistic</span></a> fedi-folks dealing with <a href="https://autistics.life/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a>? I'm trying to self-diagnose (I know, I know, but I lost my COBRA insurance and my state coverage may or may not cover this, so I'm looking into it to see what I can try on my own first) some on-going shit I deal with and this seems to fit really, REALLY well.</p><p>Thanks.</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>actuallyautistic</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyadhd" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>actuallyadhd</span></a></span></p>
Sibylle Dahrendorf<p>🎥 <a href="https://mastodon.social/tags/Documentary" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Documentary</span></a> <a href="https://mastodon.social/tags/ChronicallyIgnored" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIgnored</span></a> </p><p>Only a few days left until June 20th. I would be very grateful for sharing, so that as many people as possible can be reached! Thank you so much for your support! </p><p>A Wake-Up Call To Politics, Medicine &amp; Research</p><p><a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://mastodon.social/tags/SmallFiber" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SmallFiber</span></a> <a href="https://mastodon.social/tags/SIBO" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SIBO</span></a> <a href="https://mastodon.social/tags/Autoimmunity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Autoimmunity</span></a> <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://mastodon.social/tags/FQAD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FQAD</span></a> <a href="https://mastodon.social/tags/FQToxicity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FQToxicity</span></a> <a href="https://mastodon.social/tags/FlagylToxicity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FlagylToxicity</span></a> <a href="https://mastodon.social/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a> <a href="https://mastodon.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hEDS</span></a> <a href="https://mastodon.social/tags/Marfan" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Marfan</span></a> <a href="https://mastodon.social/tags/CCI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CCI</span></a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://mastodon.social/tags/LongLyme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongLyme</span></a> <a href="https://mastodon.social/tags/VacInjury" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>VacInjury</span></a> <a href="https://mastodon.social/tags/LongList" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongList</span></a> <a href="https://mastodon.social/tags/LongTragedy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongTragedy</span></a> </p><p>Film Link here: <br>🎥<a href="https://vimeo.com/ondemand/chronicallyignored" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">vimeo.com/ondemand/chronically</span><span class="invisible">ignored</span></a></p>
Nyx Mir<p>If you aren’t attending an IRL or virtual protest which conflicts with it, the hybrid virtual artists talk for “And Still It Remains” a <a href="https://vis.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> Exhibit is at 1pm Colorado time.</p><p>I’d love to see you there! (Just a warning though, I am Terrified of public speaking!) </p><p>More info and quick zoom registration: </p><p><a href="https://www.artworksloveland.org/events/artists-talk-covid-show" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">artworksloveland.org/events/ar</span><span class="invisible">tists-talk-covid-show</span></a></p><p><a href="https://vis.social/tags/DisabilityArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabilityArt</span></a> <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://vis.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://vis.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://vis.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dysautonomia</span></a> <a href="https://vis.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://vis.social/tags/MedicalArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MedicalArt</span></a> <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciArt</span></a></p>
Emily Johnson<p>Just saw a doctor saw his <a href="https://disabled.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> patient’s hair loss improved after he told her to put Cromolyn in shampoo, dropping this advice here for anyone else who needs this information</p>
Juchti<p>Please share this widely! ‼️ ⬇️🧵</p><p>The film "Chronically Ignored" will be available online for the first time internationally, starting Friday, June 6th, at 9 a.m (German Time). The link will be this one here: <br><a href="https://vimeo.com/ondemand/chronicallyignored" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">vimeo.com/ondemand/chronically</span><span class="invisible">ignored</span></a></p><p>"Chronically Ignored" is an investigative documentary about a dark chapter in the history of medicine.<br>1/</p><p><a href="https://mastodon.social/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a> <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.social/tags/ChronicallyIgnored" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIgnored</span></a> <a href="https://mastodon.social/tags/greatestMEdicalscandal" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>greatestMEdicalscandal</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://mastodon.social/tags/FQAD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FQAD</span></a> <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://mastodon.social/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a> <a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://mastodon.social/tags/CCI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CCI</span></a> <a href="https://mastodon.social/tags/SFN" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SFN</span></a> <a href="https://mastodon.social/tags/MEawareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEawareness</span></a></p>
illmarks <p></p><p>2025_5_6 Eternal Suffering of the Mast Cell</p> <p><a href="https://www.illmarks.com/2025_5_6-eternal-suffering-of-the-mast-cell/" class="" rel="nofollow noopener noreferrer" target="_blank">https://www.illmarks.com/2025_5_6-eternal-suffering-of-the-mast-cell/</a></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/art/" target="_blank">#art</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/autoimmune/" target="_blank">#autoimmune</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mast-cell/" target="_blank">#mastCell</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mast-cell-activation-syndrome/" target="_blank">#mastCellActivationSyndrome</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mastcell/" target="_blank">#mastcell</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mcas/" target="_blank">#mcas</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a></p>
Barbara Wimmer - shroombab<p>Weiter geht es mit meinem Blog auf longcovidonline.at &gt;&gt;</p><p>„Eine kleine Erdbeere reicht, um Tage zu leiden“ </p><p><a href="https://longcovidonline.blog/2025/05/22/mcas_erdbeere-reicht-um-tage-zu-leiden/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">longcovidonline.blog/2025/05/2</span><span class="invisible">2/mcas_erdbeere-reicht-um-tage-zu-leiden/</span></a></p><p><a href="https://chaos.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://chaos.social/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://chaos.social/tags/pem" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pem</span></a> <a href="https://chaos.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a></p>
JSkier :archlinux: :debian:<p>Apparently, my heat tolerance is way lower than it was last summer (previously 94 F). Running 5 miles in 80 F weather today triggered a mild asthma attack (I always have my inhaler with me), and my heart rate hit 190. The high HR was probably a combination of the temperature outside, pushing too hard, and all the medications I'm on. Classic fuck around and find out 😖</p><p>I will be inside on the treadmill until it's low 70s from now on. </p><p>Looking forward to starting IgE inhibitor shots in a week or two, hopefully knock down the pre-existing asthma and urticaria, and new severe allergies I now have this spring. Additionally, cut down on the medications I'm on. My doctor is unsure if I have secondary <a href="https://social.linux.pizza/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> from <a href="https://social.linux.pizza/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a>, but those three symptoms, combined with the neurological ones, sure aren't helping my quality of life lately.</p><p>I want to conclude with, I don't believe I have PEM, CFS, or POTS. My recovery plan is to stay as healthy as I can for as long as I can, and is not typical for people suffering from long covid.</p><p> <a href="https://social.linux.pizza/tags/running" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>running</span></a> <a href="https://social.linux.pizza/tags/runnersofmastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>runnersofmastodon</span></a></p>
WearyBonnie<p>I'm only a few minutes in to the latest episode of the Make Visible podcast, but it's really good. If you're interested in long covid &amp; other complex chronic illness with poorly understood pathophysiology, you may like to check it out.</p><p>&gt; Make Visible: Understanding Complex Illness: #14. Wearable technology and patient-led innovation with Dr. David Putrino</p><p>Episode webpage: <a href="https://madevisible.podbean.com/e/14-wearable-technology-and-patient-led-innovation-with-dr-david-putrino/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">madevisible.podbean.com/e/14-w</span><span class="invisible">earable-technology-and-patient-led-innovation-with-dr-david-putrino/</span></a></p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://disabled.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a></p>
Valerie Roney<p>After peeling back my immune meds this winter (because I am getting better yay!) I am now layering some back in for 🤬 allergy season.<br>As it's top of mind these days I'd like to share a list of weird symptoms that can be histamine driven: </p><p>Heartburn<br>Poor sleep<br>Nosedives in mood<br>Loss of appetite, poor digestion<br>Global body pain<br>Rag-doll tired<br>Brain fog <br>Clumsy <br>Weepy or irritable <br>Itchy (no rash)</p><p>Best indicator I have is "histamine flush" across my nose and cheeks. </p><p><a href="https://disabled.social/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://disabled.social/tags/cfsME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cfsME</span></a> <a href="https://disabled.social/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCovid</span></a></p>
conscientious objector🇨🇭🪂<p>Heute vor 5 Jahren, nach dem ersten vom <a href="https://swiss.social/tags/Bundesrat" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Bundesrat</span></a> &amp; <a href="https://swiss.social/tags/SRG" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SRG</span></a> / <a href="https://swiss.social/tags/SRF" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SRF</span></a> ausgerufenen Ende der <a href="https://swiss.social/tags/Corona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Corona</span></a>-Pandemie, habe ich mich bei Handwerkern mit <a href="https://swiss.social/tags/Corona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Corona</span></a> angesteckt. Obwohl wir uns, wie vom <a href="https://swiss.social/tags/BAG" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BAG</span></a> empfohlen, die Hände wuschen und sogar 2m Abstand hielten.</p><p>Was folgte waren 12’000 Franken Arztrechnungen, 3 Monate Krankschreibung und 1,5 Jahre krank mit Teilzeit. Zurück blieben <a href="https://swiss.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> und <a href="https://swiss.social/tags/Asthma" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Asthma</span></a>. Verlorenes Vertrauen in Medien &amp; Ärzte und ein verständnisloses soziales Umfeld. </p><p><a href="https://swiss.social/tags/Aufarbeitung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Aufarbeitung</span></a><br><a href="https://swiss.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
illmarks <p></p><p>“2025 March/April G.I. Hell”</p> <p><a href="https://www.illmarks.com/2025_march-april-recap/" class="" rel="nofollow noopener noreferrer" target="_blank">https://www.illmarks.com/2025_march-april-recap/</a></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/gerd/" target="_blank">#gerd</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mcas/" target="_blank">#mcas</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/nausea/" target="_blank">#nausea</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a></p>
Deer Witch Nyx<p>Anyways cute your sources, here’s a link to the <a href="https://kind.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://kind.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> monthly webinar for emerging treatment recommendations. Next one is about <a href="https://kind.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> on Thursday. </p><p>I haven’t been but someone said good things about Echo (the source) in Long COVID Community. </p><p><a href="https://iecho.org/public/program/PRGM1699044218879IERCAXHJ8Y" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">iecho.org/public/program/PRGM1</span><span class="invisible">699044218879IERCAXHJ8Y</span></a></p>
Juchti<p>Ich möchte euch noch auf die Arte-Doku "Chronisch krank, chronisch ignoriert" hinweisen, die die Schwere der multisystemischen Erkrankungen <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> und <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> thematisiert, aber auch die Zusammenhänge zu den Erkrankungen <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a>, <a href="https://mastodon.social/tags/CCI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CCI</span></a>, <a href="https://mastodon.social/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a>, <a href="https://mastodon.social/tags/FQAD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FQAD</span></a>, <a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> etc. </p><p>Die Doku ist auf YouTube und in der Arte-Mediathek und zeigt eindrücklich das Leid der Betroffenen. </p><p>Wann passiert endlich etwas?<br><a href="https://youtu.be/YnnDSHPaAsY?si=aSaNk1Mrt0TOyo6i" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">youtu.be/YnnDSHPaAsY?si=aSaNk1</span><span class="invisible">Mrt0TOyo6i</span></a></p>
Barbara Wimmer - shroombab<p>Ich bin jetzt auch im Club "Setzen Sie alle Medikamente ab, machen Sie Bewegung und genießen Sie den Sommer!" gelandet</p><p>-&gt; HNO-Ärztin weigerte sich, meine akute Rachenentzündung zu behandeln, als sie in meiner Akte meine Grunderkrankungen gelesen hatte <br><a href="https://chaos.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://chaos.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://chaos.social/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a></p>
Carter<p>Hello! I'm a disabled author sharing my <a href="https://sunny.garden/tags/poetry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>poetry</span></a> <a href="https://sunny.garden/tags/chapbook" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chapbook</span></a>! I have <a href="https://sunny.garden/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> and for me, it caused significant neuropsychiatric symptoms before treatment so I documented my normal in poetry.</p><p>From a period of misdiagnosis and desperation, <br>Allergic to Sanity turns struggles into stanzas to document the everyday calamity of an unpredictable bodymind. When mast cell activation causes madness, Allergic to Sanity pulls skeletons out of the closet to examine the dislocations of reality.</p><p><a href="https://bottlecap.press/products/allergic" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">bottlecap.press/products/aller</span><span class="invisible">gic</span></a></p>
Anna<p>In case it was missed in the post above, this is my updated article:</p><p>👉 <a href="https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thecanary.co/global/world-anal</span><span class="invisible">ysis/2025/04/01/anna-severe-me-cfs/</span></a></p><p>My doctor predicts I will die if I don’t leave soon. </p><p>I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.</p><p>Help please 🙏 </p><p><a href="https://aus.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://aus.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/Hypothyroidism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Hypothyroidism</span></a> <a href="https://aus.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://aus.social/tags/Neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Neisvoid</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Dysautonomia</span></a> <a href="https://aus.social/tags/SocialWork" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SocialWork</span></a> <a href="https://aus.social/tags/MedMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MedMastodon</span></a> <a href="https://aus.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PWLC</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MutualAid</span></a> <br><a href="https://aus.social/tags/HumanRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HumanRights</span></a> <a href="https://aus.social/tags/Press" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Press</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Journalism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Journalism</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SevereME</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Neglect" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Neglect</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MutualAid</span></a> <a href="https://aus.social/tags/Narcissist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Narcissist</span></a> <a href="https://aus.social/tags/Psychopath" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Psychopath</span></a> <a href="https://aus.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://aus.social/tags/MCAD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAD</span></a> <a href="https://aus.social/tags/Endometriosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Endometriosis</span></a> <a href="https://aus.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://aus.social/tags/CostOfLivingCrisis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CostOfLivingCrisis</span></a> <a href="https://aus.social/tags/Melbourne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Melbourne</span></a> <a href="https://aus.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Australia</span></a> <a href="https://aus.social/tags/DomesticAbuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DomesticAbuse</span></a> <a href="https://aus.social/tags/DV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DV</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>neisvoid</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disabilityjustice</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disability</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/socialwork" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>socialwork</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>dysautonomia</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mutualaid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mutualaid</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicpain" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicpain</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mcas" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mcas</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/australia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>australia</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/melbourne" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>melbourne</span></a></span></p>
Barbara Wimmer - shroombab<p>Hab aktuell 3 Podcast-Hörempfehlungen zum Thema <a href="https://chaos.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> und <a href="https://chaos.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a></p><p>Nina von der Mastzellenhilfe beim Fasy.nation Podcast <a href="https://www.mastzellenhilfe.de/mcas-und-me-cfs-literatur/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">mastzellenhilfe.de/mcas-und-me</span><span class="invisible">-cfs-literatur/</span></a> &amp; <a href="https://www.fasynation.de/der-podcast-zum-chronischen-erschoepfungssyndrom-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">fasynation.de/der-podcast-zum-</span><span class="invisible">chronischen-erschoepfungssyndrom-me-cfs/</span></a></p><p>Die Degranulate ME Folge vom Voices on ME/CFS Podcast der Meduni Wien <a href="https://www.meduniwien.ac.at/web/forschung/projekte/computer-based-clustering-of-chronic-fatigue-syndrome-patients/podcast/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meduniwien.ac.at/web/forschung</span><span class="invisible">/projekte/computer-based-clustering-of-chronic-fatigue-syndrome-patients/podcast/</span></a></p>
🅐🅛🅘🅒🅘🅐<p>New <a href="https://sunny.garden/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a> post! </p><p>I'm Alicia and I'm a fibre artist (<a href="https://sunny.garden/tags/dyeing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dyeing</span></a> <a href="https://sunny.garden/tags/handspinning" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>handspinning</span></a> <a href="https://sunny.garden/tags/felting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>felting</span></a> <a href="https://sunny.garden/tags/needlefelting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>needlefelting</span></a> <a href="https://sunny.garden/tags/weaving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>weaving</span></a> <a href="https://sunny.garden/tags/crochet" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crochet</span></a> <a href="https://sunny.garden/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> <a href="https://sunny.garden/tags/upcycling" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>upcycling</span></a> <a href="https://sunny.garden/tags/sewing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sewing</span></a>) with interests in <a href="https://sunny.garden/tags/mandala" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mandala</span></a> <a href="https://sunny.garden/tags/art" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>art</span></a> <a href="https://sunny.garden/tags/psychedelicart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>psychedelicart</span></a> <a href="https://sunny.garden/tags/sacredgeometry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sacredgeometry</span></a> <a href="https://sunny.garden/tags/neurographicart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurographicart</span></a> and <a href="https://sunny.garden/tags/watercolors" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>watercolors</span></a>. </p><p>My family and I run a business called <span class="h-card" translate="no"><a href="https://mastoart.social/@Fibre2Fabric" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Fibre2Fabric</span></a></span> where we dye all sorts of exotic <a href="https://sunny.garden/tags/fibre" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibre</span></a> <a href="https://sunny.garden/tags/yarn" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>yarn</span></a>, and <a href="https://sunny.garden/tags/fabric" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fabric</span></a>. </p><p>I live in the country with my partner and our 6 <a href="https://sunny.garden/tags/cats" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cats</span></a>, 3 <a href="https://sunny.garden/tags/dogs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dogs</span></a>, <a href="https://sunny.garden/tags/snake" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>snake</span></a> and <a href="https://sunny.garden/tags/crestedgecko" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crestedgecko</span></a> where I enjoy my many interests. (<a href="https://sunny.garden/tags/gardening" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gardening</span></a> <a href="https://sunny.garden/tags/plants" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>plants</span></a> <a href="https://sunny.garden/tags/herbalism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>herbalism</span></a> <a href="https://sunny.garden/tags/fungi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fungi</span></a> <a href="https://sunny.garden/tags/music" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>music</span></a> <a href="https://sunny.garden/tags/ukulele" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ukulele</span></a> <a href="https://sunny.garden/tags/piano" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>piano</span></a> <a href="https://sunny.garden/tags/dancing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dancing</span></a> <a href="https://sunny.garden/tags/flowart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>flowart</span></a> <a href="https://sunny.garden/tags/reading" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>reading</span></a> <a href="https://sunny.garden/tags/writing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>writing</span></a> <a href="https://sunny.garden/tags/tarot" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>tarot</span></a> <a href="https://sunny.garden/tags/poetry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>poetry</span></a> <a href="https://sunny.garden/tags/haiku" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>haiku</span></a> <a href="https://sunny.garden/tags/cozygames" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cozygames</span></a> and I'm getting more into <a href="https://sunny.garden/tags/opensource" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>opensource</span></a> / <a href="https://sunny.garden/tags/linux" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>linux</span></a>) </p><p>When I say flow art, I mean spinning props like <a href="https://sunny.garden/tags/hulahoop" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hulahoop</span></a> <a href="https://sunny.garden/tags/leviwand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>leviwand</span></a> <a href="https://sunny.garden/tags/puppyhammer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>puppyhammer</span></a> <a href="https://sunny.garden/tags/poi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>poi</span></a> <a href="https://sunny.garden/tags/staff" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>staff</span></a> <a href="https://sunny.garden/tags/silkfans" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>silkfans</span></a> <a href="https://sunny.garden/tags/firefans" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>firefans</span></a> etc. </p><p>I love <a href="https://sunny.garden/tags/languagelearning" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>languagelearning</span></a>. I studied <a href="https://sunny.garden/tags/German" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>German</span></a> and <a href="https://sunny.garden/tags/Spanish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spanish</span></a> as a kid, took <a href="https://sunny.garden/tags/Japanese" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Japanese</span></a> in uni, and I'm currently studying <a href="https://sunny.garden/tags/ASL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ASL</span></a> <a href="https://sunny.garden/tags/Cree" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Cree</span></a> <a href="https://sunny.garden/tags/Tokipona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Tokipona</span></a> <a href="https://sunny.garden/tags/Spanish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spanish</span></a> and <a href="https://sunny.garden/tags/Chinese" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Chinese</span></a>. I also dabble in <a href="https://sunny.garden/tags/French" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>French</span></a> and <a href="https://sunny.garden/tags/Latin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Latin</span></a> sometimes and I'm learning <a href="https://sunny.garden/tags/Greggshorthand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Greggshorthand</span></a> to write faster. Cree is my favourite language and Spanish is my second. </p><p>I've been cursed since childhood with that lovely trifecta of <a href="https://sunny.garden/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://sunny.garden/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> and <a href="https://sunny.garden/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a>. Healing slowly but surely. </p><p>Hope I get to meet even more cool people the algorithms would normally drown out on other social media sites. I love it here! </p><p><a href="https://sunny.garden/tags/intro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>intro</span></a> <a href="https://sunny.garden/tags/yeg" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>yeg</span></a> <a href="https://sunny.garden/tags/edmonton" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edmonton</span></a> <a href="https://sunny.garden/tags/alberta" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>alberta</span></a> <a href="https://sunny.garden/tags/canada" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>canada</span></a></p>
Yogi Jaeger<p>I have <a href="https://spore.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> and <a href="https://spore.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> since January 2024, triggered by an <a href="https://spore.social/tags/RSV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RSV</span></a> infection that should just have been a cold at my age. But it wasn't since I had <a href="https://spore.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> in 2021...</p><p>I've been ill for<br>- more than a year, or<br>- more than 440 days.</p><p>Stop the spread. <br>Millions are missing worldwide.<br><a href="https://spore.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> is not over.</p><p><a href="https://spore.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>