Shakedown Social

(((Cindy Weinstein)))Congratulations to <a href="https://mastodon.world/tags/neurologist" class="mention hashtag" rel="nofollow noopener" target="_blank">#neurologist</a> BruceMiller, recipient of the Susan Newhouse & Si Newhouse Award of Hope for a lifetime of <a href="https://mastodon.world/tags/FTD" class="mention hashtag" rel="nofollow noopener" target="_blank">#FTD</a> (<a href="https://mastodon.world/tags/frontotemporaldementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#frontotemporaldementia</a>) research. His brilliance & empathy have touched so many, myself included. 1 of the most profound gifts he gave me was a <a href="https://mastodon.world/tags/precision" class="mention hashtag" rel="nofollow noopener" target="_blank">#precision</a> <a href="https://mastodon.world/tags/diagnosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#diagnosis</a>: <a href="https://mastodon.world/tags/early" class="mention hashtag" rel="nofollow noopener" target="_blank">#early</a>-onset <a href="https://mastodon.world/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s w/the <a href="https://mastodon.world/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> variant (word-finding). How I wish he'd been my father's <a href="https://mastodon.world/tags/dr" class="mention hashtag" rel="nofollow noopener" target="_blank">#dr</a>. during those dark years. His care for <a href="https://mastodon.world/tags/families" class="mention hashtag" rel="nofollow noopener" target="_blank">#families</a>, <a href="https://mastodon.world/tags/caregivers" class="mention hashtag" rel="nofollow noopener" target="_blank">#caregivers</a>, & <a href="https://mastodon.world/tags/people" class="mention hashtag" rel="nofollow noopener" target="_blank">#people</a> w/#dementia is unrivalled.

(((Cindy Weinstein)))It's <a href="https://mastodon.world/tags/BrainAwarenessWeek" class="mention hashtag" rel="nofollow noopener" target="_blank">#BrainAwarenessWeek</a>. Here is an image of the three different <a href="https://mastodon.world/tags/variants" class="mention hashtag" rel="nofollow noopener" target="_blank">#variants</a> of <a href="https://mastodon.world/tags/PrimaryProgressiveAphasia" class="mention hashtag" rel="nofollow noopener" target="_blank">#PrimaryProgressiveAphasia</a>. Where the <a href="https://mastodon.world/tags/brain" class="mention hashtag" rel="nofollow noopener" target="_blank">#brain</a> is hit will determine the kind of <a href="https://mastodon.world/tags/aphasia" class="mention hashtag" rel="nofollow noopener" target="_blank">#aphasia</a> and what that will sound like when the person with <a href="https://mastodon.world/tags/PPA" class="mention hashtag" rel="nofollow noopener" target="_blank">#PPA</a> speaks. My father, who had <a href="https://mastodon.world/tags/early" class="mention hashtag" rel="nofollow noopener" target="_blank">#early</a>-onset <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> had the <a href="https://mastodon.world/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> variant.<a href="https://mastodon.world/tags/PrecisionDiagnosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#PrecisionDiagnosis</a> <a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))Although I am not a neurologist, I think a lot about the <a href="https://zirk.us/tags/variants" class="mention hashtag" rel="nofollow noopener" target="_blank">#variants</a> of <a href="https://zirk.us/tags/PrimaryProgressiveAphasia" class="mention hashtag" rel="nofollow noopener" target="_blank">#PrimaryProgressiveAphasia</a>. I wrote a <a href="https://zirk.us/tags/memoir" class="mention hashtag" rel="nofollow noopener" target="_blank">#memoir</a> about my father's <a href="https://zirk.us/tags/early" class="mention hashtag" rel="nofollow noopener" target="_blank">#early</a>-onset <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s with <a href="https://zirk.us/tags/neurologist" class="mention hashtag" rel="nofollow noopener" target="_blank">#neurologist</a>, <a href="https://zirk.us/tags/Dr" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dr</a>.BruceMiller of <a href="https://zirk.us/tags/UCSF" class="mention hashtag" rel="nofollow noopener" target="_blank">#UCSF</a>'s <a href="https://zirk.us/tags/MemoryAndAgingCenter" class="mention hashtag" rel="nofollow noopener" target="_blank">#MemoryAndAgingCenter</a>. It explains where in the <a href="https://zirk.us/tags/brain" class="mention hashtag" rel="nofollow noopener" target="_blank">#brain</a> the initial assault happens and helps us understand why people can't find the right words and/or garble them and/or repeat them. After many years, I learned that my father had the <a href="https://zirk.us/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> variant.<a href="https://zirk.us/tags/PrecisionDiagnosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#PrecisionDiagnosis</a>

(((Cindy Weinstein)))Here is an image from my <a href="https://mastodon.world/tags/memoir" class="mention hashtag" rel="nofollow noopener" target="_blank">#memoir</a> -- FindingTheRightWords: A Story of <a href="https://mastodon.world/tags/Literature" class="mention hashtag" rel="nofollow noopener" target="_blank">#Literature</a>, <a href="https://mastodon.world/tags/Grief" class="mention hashtag" rel="nofollow noopener" target="_blank">#Grief</a>, and the <a href="https://mastodon.world/tags/Brain" class="mention hashtag" rel="nofollow noopener" target="_blank">#Brain</a> -- with neurologist, Dr. Bruce Miller of <a href="https://mastodon.world/tags/UCSF" class="mention hashtag" rel="nofollow noopener" target="_blank">#UCSF</a>. It describes the different kinds of <a href="https://mastodon.world/tags/aphasia" class="mention hashtag" rel="nofollow noopener" target="_blank">#aphasia</a>. My father had <a href="https://mastodon.world/tags/early" class="mention hashtag" rel="nofollow noopener" target="_blank">#early</a>-onset <a href="https://mastodon.world/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s with the <a href="https://mastodon.world/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> variant. I think about this image a lot and how it can help us understand why people can't find the right words and/or garble them and/or repeat them.<a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))I wrote a <a href="https://zirk.us/tags/memoir" class="mention hashtag" rel="nofollow noopener" target="_blank">#memoir</a> about my father's early-onset <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s with the <a href="https://zirk.us/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> <a href="https://zirk.us/tags/variant" class="mention hashtag" rel="nofollow noopener" target="_blank">#variant</a> (word-finding) -- called Finding the Right Words -- only to/in order to (?) realize that sometimes, maybe a lot of times, the most important <a href="https://zirk.us/tags/caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#caregiving</a> is not about words at all. Scout, my chihuahua and I think all <a href="https://zirk.us/tags/dogs" class="mention hashtag" rel="nofollow noopener" target="_blank">#dogs</a>, know this simple and hard thing, which <a href="https://zirk.us/tags/humans" class="mention hashtag" rel="nofollow noopener" target="_blank">#humans</a> -- at least this human -- struggle to understand and embrace. <a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#EndAlz</a> <a href="https://zirk.us/tags/NationalCaregiversMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#NationalCaregiversMonth</a> <a href="https://zirk.us/tags/AlzheimersAwarenessMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#AlzheimersAwarenessMonth</a>

(((Cindy Weinstein)))It's <a href="https://zirk.us/tags/AlzheimersAwarenessMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#AlzheimersAwarenessMonth</a>. When my father was diagnosed in the 80s in his mid-50s, the different kinds of <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> & <a href="https://zirk.us/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> weren't known. When I met <a href="https://zirk.us/tags/neurologist" class="mention hashtag" rel="nofollow noopener" target="_blank">#neurologist</a> <a href="https://zirk.us/tags/BruceMiller" class="mention hashtag" rel="nofollow noopener" target="_blank">#BruceMiller</a>, he explained that the real diagnosis was <a href="https://zirk.us/tags/earlyonset" class="mention hashtag" rel="nofollow noopener" target="_blank">#earlyonset</a> Alzheimer's w/the <a href="https://zirk.us/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> variant (word-finding). The <a href="https://zirk.us/tags/diagnosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#diagnosis</a> came late (death had already come) but what a relief to have the words & a deeper understanding of what turned my father's life, mine, & my family's inside out.<a href="https://weinsteinandmiller.com" rel="nofollow noopener" translate="no" target="_blank">https://weinsteinandmiller.com</a>

(((Cindy Weinstein)))It's <a href="https://mastodon.world/tags/AlzheimersAwarenessMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#AlzheimersAwarenessMonth</a>. When my father was diagnosed in the 80s in his mid-50s, the different kinds of <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> & <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> weren't known. When I met <a href="https://mastodon.world/tags/neurologist" class="mention hashtag" rel="nofollow noopener" target="_blank">#neurologist</a> <a href="https://mastodon.world/tags/BruceMiller" class="mention hashtag" rel="nofollow noopener" target="_blank">#BruceMiller</a>, he explained that the real diagnosis was <a href="https://mastodon.world/tags/earlyonset" class="mention hashtag" rel="nofollow noopener" target="_blank">#earlyonset</a> Alzheimer's w/the <a href="https://mastodon.world/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> variant (word-finding). The <a href="https://mastodon.world/tags/diagnosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#diagnosis</a> came late (death had already come) but what a relief to have the words & a deeper understanding of what turned my father's life, mine, & my family's inside out.<a href="https://weinsteinandmiller.com" rel="nofollow noopener" translate="no" target="_blank">https://weinsteinandmiller.com</a>

(((Cindy Weinstein)))September is <a href="https://zirk.us/tags/WorldAlzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#WorldAlzheimer</a>'sAwarenessMonth. The <a href="https://zirk.us/tags/science" class="mention hashtag" rel="nofollow noopener" target="_blank">#science</a> of <a href="https://zirk.us/tags/brain" class="mention hashtag" rel="nofollow noopener" target="_blank">#brain</a> health is making great strides thanks to <a href="https://zirk.us/tags/neurologists" class="mention hashtag" rel="nofollow noopener" target="_blank">#neurologists</a> and other <a href="https://zirk.us/tags/researchers" class="mention hashtag" rel="nofollow noopener" target="_blank">#researchers</a>. Here is a chart, assembled by <a href="https://zirk.us/tags/UCSF" class="mention hashtag" rel="nofollow noopener" target="_blank">#UCSF</a> <a href="https://zirk.us/tags/doctors" class="mention hashtag" rel="nofollow noopener" target="_blank">#doctors</a>, explaining the three different <a href="https://zirk.us/tags/variants" class="mention hashtag" rel="nofollow noopener" target="_blank">#variants</a> of <a href="https://zirk.us/tags/aphasia" class="mention hashtag" rel="nofollow noopener" target="_blank">#aphasia</a> that you or a loved one may be experiencing. <a href="https://zirk.us/tags/MRIs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MRIs</a> can determine where in the <a href="https://zirk.us/tags/brain" class="mention hashtag" rel="nofollow noopener" target="_blank">#brain</a> the <a href="https://zirk.us/tags/damage" class="mention hashtag" rel="nofollow noopener" target="_blank">#damage</a> is happening and correlate it to the type of aphasia. My beloved father, Jerry, who had <a href="https://zirk.us/tags/early" class="mention hashtag" rel="nofollow noopener" target="_blank">#early</a>-onset <a href="https://zirk.us/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s, had the <a href="https://zirk.us/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> variant. <a href="https://zirk.us/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#EndAlz</a>

(((Cindy Weinstein)))September is <a href="https://mastodon.world/tags/WorldAlzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#WorldAlzheimer</a>'sAwarenessMonth. The <a href="https://mastodon.world/tags/science" class="mention hashtag" rel="nofollow noopener" target="_blank">#science</a> of <a href="https://mastodon.world/tags/brain" class="mention hashtag" rel="nofollow noopener" target="_blank">#brain</a> health is making great strides thanks to <a href="https://mastodon.world/tags/neurologists" class="mention hashtag" rel="nofollow noopener" target="_blank">#neurologists</a> and other <a href="https://mastodon.world/tags/researchers" class="mention hashtag" rel="nofollow noopener" target="_blank">#researchers</a>. Here is a chart, assembled by <a href="https://mastodon.world/tags/UCSF" class="mention hashtag" rel="nofollow noopener" target="_blank">#UCSF</a> <a href="https://mastodon.world/tags/doctors" class="mention hashtag" rel="nofollow noopener" target="_blank">#doctors</a>, explaining the three different <a href="https://mastodon.world/tags/variants" class="mention hashtag" rel="nofollow noopener" target="_blank">#variants</a> of <a href="https://mastodon.world/tags/aphasia" class="mention hashtag" rel="nofollow noopener" target="_blank">#aphasia</a> that you or a loved one may be experiencing. <a href="https://mastodon.world/tags/MRIs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MRIs</a> can determine where in the <a href="https://mastodon.world/tags/brain" class="mention hashtag" rel="nofollow noopener" target="_blank">#brain</a> the <a href="https://mastodon.world/tags/damage" class="mention hashtag" rel="nofollow noopener" target="_blank">#damage</a> is happening and correlate it to the type of aphasia. My beloved father, Jerry, who had <a href="https://mastodon.world/tags/early" class="mention hashtag" rel="nofollow noopener" target="_blank">#early</a>-onset <a href="https://mastodon.world/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s, had the <a href="https://mastodon.world/tags/logopenic" class="mention hashtag" rel="nofollow noopener" target="_blank">#logopenic</a> variant. <a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#EndAlz</a>

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