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#CovidIsNotOver

34 posts31 participants2 posts today
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Public
ahimsa

@ddp Thanks for posting this video! ❤️

From the YouTube summary:

"It’s estimated 65,000 New Zealanders have the disease – with Long Covid driving ME rates 15 times higher than before the pandemic."

Another sad statistic showing that COVID is not over. 😔

#MEcfs#LongCovid#COVID
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ahimsa

💙 It's May 12th, International ME/CFS Awareness Day 💙

My ME/CFS onset was in Jan 1990

🚨 Many recent ME/CFS cases have been triggered by COVID 🚨

In this thread I plan to post about 3 main things:

1. My ME/CFS story (briefly)

2. Helpful resources for patients and clinicians

3. Advocacy options for patients & allies (friends/family) - mostly US based

1/n

@mecfs @longcovid

I am one of the 2025 Millions Missing calling out an SOS: Save our support systems. Save our science. Save our society.
#MEcfs#LongCovid#PostCovid
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Jenny

'Long Covid Symptom Clusters, Correlates and Predictors in a Highly Vaccinated Australian Population in 2023'

👉 19.9% reported long Covid...

👉 "We found no significant difference in the likelihood of long Covid between the Omicron and pre‐Omicron periods, vaccination status and participant age."

pmc.ncbi.nlm.nih.gov/articles/

TY to bsky.app/profile/sorenlarsen.b on BlueSky for sharing.

#COVID #LongCOVID #Omicron #Australia #WearAMask #COVIDIsNotOver @novid

PubMed Central (PMC)Long Covid Symptom Clusters, Correlates and Predictors in a Highly Vaccinated Australian Population in 2023Limited data exists regarding long Covid burden following Omicron infection in highly vaccinated populations. To (1) characterise long Covid prevalence and predictors and (2) identify key symptom clusters and their correlates among long Covid ...
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Broadwaybabyto

“All of these precautions have kept me safe. In contrast, almost all my colleagues have had COVID at least once—some multiple times. Some even have Long COVID.”

Mitigations work! Repeat infections are not inevitable.

Grateful to the HCWs still masking & protecting themselves and their patients

whn.global/why-i-still-wear-an

WHN · Why I Still Wear an N95: A Doctor’s Perspective - WHNBy Nancy Malek@N95Anaesthetist Dr Nancy Malek is a Senior Visiting Medical Officer Anaesthetist at Nepean Public Hospital in Sydney, Australia. She is currently leading a research project exploring Australian anaesthetists’ experiences during the ongoing COVID-19 pandemic. She is actively involved in improving education around COVID and advocates for evidence-based airborne precautions in hospitals to safeguard … Continued
#wearamask#n95#keepmasksinhealthcare
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Vereesh

We needed to install a heavy new appliance. My partner said he would ask our friend to come help, but when I said to be sure to ask him to mask, he felt it was too big an ask. So we managed to do it ourselves, just him and me, a disabled woman with no strength. It was dangerous, and involved sweat, a jack, several boards, and lots of swearing. It most likely will cause me an ugly crash. Because a mask was too much to ask. I'm troubled. #CovidIsNotOver #disability #mecfs

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Denis - The COVID info guy -

🇬🇧 UK: Failure to focus on COVID suppression led to avoidable UK deaths, says expert

Prof. Anthony Costello says UK could've avoided many COVID deaths with a suppression strategy, urges better pandemic science governance and recognition of long-term suppression policies.

"Had the UK followed the same strategy and achieved the same excess cumulative death rate by March 2024 as South Korea, 69 instead of 344 deaths per 100,000, it might have prevented up to 180,000 UK deaths."

#COVID19UK #COVIDisNotOVER

Source: archive.md/7ZW7m

May 11, 2025 The GIST Editors' notes Failure to focus on COVID suppression led to avoidable UK deaths, says expert by British Medical Journal
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sport of sacred spherical cows

Updated #CDC estimates show we'd pretty much been in a JN.1.11 soup since Dec, until late March, when LP.8.1 took majority.

Data collection continues to be low priority nationally—as exactly zero regions have enough data for CDC to plot.

CDC breaks out recombinant XFC from FLiRT parent LF.7 . (Our dataviz now identifies parentage for each recombinant.) Raj's dashboard was last updated today.

❖ #ThisIsOurPolio #Covid #Covid19 #SARS2 #variants #CovidIsNotOver #CovidIsAirborne #dataviz #datavis

Chart: Estimated U.S. Variant Proportions by Common Name Sources: CDC, Cov-Lineages, NYITCOM, D. Focosi, WHN, others [ beadsland on Ko-fi ] Reskin of CDC's Variants Nowcast, and any significant variants in GISAID not broken out by CDC. Five bar-style tree-charts, for fortnights through 4/27–5/10. Legend of last fortnight, organized by subheadings of color-grouped families and convergent clusters. Percentages overlay each color key, reflecting share as of most recent tree-chart. LP.8.1 accounts for over two thirds. For 4/13–4/26, packed bubble charts fill single-variant tiles, reflecting GISAID detail not shown by CDC's Nowcast. Legend: JN.1.11 + FLiRT31 [purple]: 70% - LP.8.1.1 / NY†, LP.8.1.8† & other LP.8.1 JN.1 + FLiRT-LF [browns]: 9% - XFC 3% - LF.7.7.2 2% - XFG† & other LF.7 2% - LF.7.7.1 & LF.7.2.1 / PC JN.1 + FLiRT [reds]: 2% - LB.1.3.1 / NL 1% - XEC.4 ½% - XEQ 6% - other XEC JN.1.11 [greens]: 3% - MC.10.1 & PA.1 ⅓% - KP.3 2% - MC.1, MC.19 & other KP.3.1.1 / MC JN.1.11 + FLiRT31 [blue]: ⅓% - XEK Other [greys]: ⅐% - NB.1.8.1†, JN.1.16 & other WHO-Vaccine-Target JN.1 ⅒% - Other (not specified) _____ XEC is a child of FLiRT cluster KS.1.1 and FLuQE cluster KP.3.3. XEK is a child of FLiRT31 cluster KP.2.3 and recombinant XEC. XEQ is a child of FLiRT cluster KS.1.1.2 and FLuQE cluster KP.3. XFC is a child of FLiRT31 cluster LP.8.1.1 and FLiRT cluster LF.7. XFG is a child of FLiRT31 cluster LP.8.1.2 and FLiRT cluster LF.7. [Add'l footnotes omitted.]
Public
Conny with a Y :tinoflag:

The recent case of measles in Auckland demonstrates the importance of infection control. Like Covid, measles is airborne. Cleaning the air in public spaces like schools and ECE will help protect the community! Vaccination and masking with a respirator (like N95) protects you personally.
Sign our petition to get the government's support for clean air and other protective measures:
our.actionstation.org.nz/petit

"Vaccine rates putting New Zealand at risk of measles outbreak, health expert says" rnz.co.nz/news/national/560669

#CleanAir
#measles
#CovidNZ
#NZpol
#CovidIsNotOver

OurActionStationClean Air in SchoolsCovid can have substantial impacts on peoples’ health. Although Covid initially enters the body through the respiratory system, it can affect virtually every bodily system and organ. There are no advantages to catching Covid. Every infection increases the chance of serious damage to the body.[1] Studies show that at least 10% of all Covid infections result in Long Covid, including in children.[2] Long Covid symptoms include fatigue, brain fog, dizziness and headaches, sleep disruption, and...
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Tom Kindlon

Need for awareness & surveillance of long-term #postCOVID neurodegenerative disorders. A position paper from the neuroCOVID‐19 task force of the European Academy of Neurology

link.springer.com/article/10.1

"An increase in the incidence of neurodegenerative diseases might be expected”

@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #CovidBrain @covid19 #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver #auscovid19

SpringerLinkNeed for awareness and surveillance of long-term post-COVID neurodegenerative disorders. A position paper from the neuroCOVID‐19 task force of the European Academy of Neurology - Journal of NeurologyBackground Neuropathological and clinical studies suggest that infection with SARS-CoV-2 may increase the long-term risk of neurodegeneration. Methods We provide a narrative overview of pathological and clinical observations justifying the implementation of a surveillance program to monitor changes in the incidence of neurodegenerative disorders in the years after COVID-19. Results Autopsy studies revealed diverse changes in the brain, including loss of vascular integrity, microthromboses, gliosis, demyelination, and neuronal- and glial injury and cell death, in both unvaccinated and vaccinated individuals irrespective of the severity of COVID-19. Recent data suggest that microglia play an important role in sustained COVID-19-related inflammation, which contributes to the etiology initiating a neurodegenerative cascade, to the worsening of pre-existing neurodegenerative disease or to the acceleration of neurodegenerative processes. Histopathological data have been supported by neuroimaging, and epidemiological studies also suggested a higher risk for neurodegenerative diseases after COVID-19. Conclusions Due to the high prevalence of COVID-19 during the pandemic, healthcare systems should be aware of, and be prepared for a potential increase in the incidence of neurodegenerative diseases in the upcoming years. Strategies may include follow-up of well-described cohorts, analyses of outcomes in COVID-19-registries, nationwide surveillance programs using record-linkage of ICD-10 diagnoses, and comparing the incidence of neurodegenerative disorders in the post-pandemic periods to values of the pre-pandemic years. Awareness and active surveillance are particularly needed, because diverse clinical manifestations due to earlier SARS-CoV-2 infections may no longer be quoted as post-COVID-19 symptoms, and hence, increasing incidence of neurodegenerative pathologies at the community level may remain unnoticed.
Public
Broadwaybabyto

Jeff Bridges opens up about his battle with Covid/Long Covid, and states he thinks he got the virus in a healthcare setting where he was receiving chemo for cancer.

If the rich & famous can’t get healthcare workers to mask… what chance do the rest of us have?

Masks in healthcare now!

cnn.com/2025/05/10/entertainme

CNN · Jeff Bridges says he’s ‘feeling good’ nearly 5 years after cancer diagnosis, but dealing with ‘long-term’ Covid effectsBy Dan Heching
#covidisairborne#covidisnotover#longcovid
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Hermit

Indoor CO2 map app!

“As of Today the indoorco2map.com App is out of beta and available as regular Version in the Android and Apple app store. This is a big milestone, yet only still the beginning of a long road ahead to put indoor air quality both figuratively and literally on the map. Thanks a lot to all testers!”

From:
bsky.app/profile/aurel.indoorc

Sorry, a link to Bluesky, but too important not to share

Bluesky Social · Aurel Wünsch (@aurel.indoorco2map.com)As of Today the indoorco2map.com App is out of beta and available as regular Version in the Android and Apple app store. This is a big milestone, yet only still the beginning of a long road ahead to put indoor air quality both figuratively and literally on the map. Thanks a lot to all testers!
#CovidIsNotOver#CovidIsAirborne
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Bruce Mirken

Your occasional reminder that #CovidIsNotOver
linkedin.com/posts/drmullen_sp

www.linkedin.comSpouses’ Individual and Shared Cumulative Risk: Implications for… | Sean MullenNew study first-authored by my colleague, Dr. Mejia, highlights why we must think beyond the individual when it comes to health—and why that’s especially urgent in the age of COVID. Hot off the press at American Journal of Preventive Medicine, the study followed nearly 4,000 older adult couples over 8 years, using biomarker data to track frailty, cardiometabolic, and total biological risk. What they found was striking: Shared risk—when both spouses had elevated health indicators—predicted disability and death more powerfully than individual risk alone. Even after adjusting for demographics and shared behaviors (like smoking, physical activity, and sleep), the cumulative biological strain on both partners emerged as a distinct and potent risk factor. In other words: the body keeps the score, but so does the relationship. This isn’t just about aging. It’s a model for understanding chronic illness in shared environments. Now think about airborne disease. Think about COVID. What happens when both partners are repeatedly exposed to a virus that invades the brain, heart, and immune system? What happens when one develops Long COVID? Or when both do—but with different symptoms and timelines? What about the additional stress of caregiving, sleep disruption, and lost routines? We don’t just share air—we share biological burden. This study signals the need to rethink prevention, intervention, and recovery—not just for aging adults, but for any systemic illness shaped by a shared context. If you need a refresher—or if your doctor still thinks COVID is "just a respiratory virus"—here’s a one-page fact sheet with peer-reviewed citations on how SARS-CoV-2 causes multi-organ damage and remains a threat: https://lnkd.in/gvhag6zp Let’s stop pretending the pandemic didn’t happen—or that it’s over. Let’s start designing care that reflects how health is built, and sometimes broken, together. That redesign must start in our public schools, institutions of “higher learning” and our so-called “healthcare facilities.” Faculty share air with colleagues and students. Students share dorm rooms and apartments. Doctors share air with sick patients, who share it with other vulnerable patients. The spread of airborne pathogens must be reconsidered at a massive scale. Brick by brick. We already have the tools to end volumes of chronic illness—by cleaning the air in shared spaces. It makes sense medically. Economically. Ethically. And yet, we continue to sit in poorly ventilated rooms while everyone coughs, sneezes, and exhales not just viruses but carbon dioxide levels that impair cognition and productivity when they rise above 800ppm. But we do nothing.
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