Shakedown Social

7 posts6 participants0 posts today

Chronic Illness Humor FunnyAfter hearing how eating sugar, gluten, and dairy affects people with autoimmune disorders, I’ve decided to cut back on the amount of people I listen to<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/autoimmunedisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunedisease</a> <a href="https://mastodon.social/tags/autoimmunedisorder" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunedisorder</a> <a href="https://mastodon.social/tags/autoimmunehumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunehumor</a> <a href="https://mastodon.social/tags/lupushumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#lupushumor</a> <a href="https://mastodon.social/tags/rheumatoidarthritishumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#rheumatoidarthritishumor</a> <a href="https://mastodon.social/tags/mctd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mctd</a> <a href="https://mastodon.social/tags/sjogrens" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#sjogrens</a>

Magic CauldronEigentlich wollte ich "nur eben schnell" (Ha, ha.) endlich die Einreichung für einen Upcycling-Workshop mit Patchwork (<a href="https://treehouse.technopagans.de/tags/EPP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EPP</a>, <a href="https://treehouse.technopagans.de/tags/Slowstitching" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Slowstitching</a>) für den <a href="https://treehouse.technopagans.de/tags/CFC24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFC24</a> der <a href="https://chaos.social/@haecksen" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@haecksen</a> schreiben und dann nahm mein Gehirn eine komisch Abzweigung und ich überlege, ob ich mich an einen Vortrag (in dem Rahmen noch nie gemacht) mit dem Arbeitstitel "I craft, so I don't kill people" heranwagen soll. Gäbe es Interesse an sowas? Wäre über meine persönlichen Erfahrungen, Hilfsmittel/Settings/Tipps, um mit Handarbeiten Anxiety im Angesicht der Dystopie, in der wir gerade Leben, runter zu bringen. Würde mich über euer sehr zeitnahes Feedback freuen, da Einreichungen nur heute noch möglich.<a href="https://treehouse.technopagans.de/tags/crafting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crafting</a> <a href="https://treehouse.technopagans.de/tags/handarbeiten" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#handarbeiten</a> <a href="https://treehouse.technopagans.de/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://treehouse.technopagans.de/tags/anxiety" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#anxiety</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/mentalhealthhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mentalhealthhumor</a> <a href="https://mastodon.social/tags/mentalhealthmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mentalhealthmemes</a> <a href="https://mastodon.social/tags/antitrumpmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#antitrumpmemes</a>

SleepyCattenHey lovelies :PinkHeart: Apologies that we're struggling to interact here or other places like Discord 🥺Whilst ADHD med titration is realistically going about as well as possible and is overall highly positive, it's not being done in a vaccum.There are sadly other life factors that are making us struggle to have the mental bandwidth or desire to be more social 😞Due to these factors, we're prioritising the wellbeing of us, our wife, and our cattens over others. We're aware that this is selfish, but we can't do this and help everyone else right now.You can still reach us in theory via Discord, but we may take several days (up to a week sometimes) to send a basic response.If you have us on Signal, Matrix, or Delta Chat, we'll likely respond a bit sooner, but please expect us to be slow to respond and limited in capacity.Sorry that we're not more capable and resilient 😢<a href="https://cultofshiv.wtf/tags/MentalHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MentalHealth</a> <a href="https://cultofshiv.wtf/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://cultofshiv.wtf/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ADHD</a> <a href="https://cultofshiv.wtf/tags/AuDHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AuDHD</a> <a href="https://cultofshiv.wtf/tags/neurodivergent" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurodivergent</a>

Shady JonAs the meds that I take for <a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#lupus</a> continue to help me feel better, I've come up against an interesting paradox: I have more energy, but my body still demands that I move slowly. Learning to separate "I have more energy today" from "that means I can get a lot done" has been difficult and runs counter to the culture of productivity that my mind has been trained for. And that training runs deep!<a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://wandering.shop/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://wandering.shop/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/chronicpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicpain</a> <a href="https://mastodon.social/tags/chronicpainmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicpainmemes</a> mentalhealthmemes

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonielife</a> <a href="https://mastodon.social/tags/spooniememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spooniememes</a> <a href="https://mastodon.social/tags/mentalhealthhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mentalhealthhumor</a> <a href="https://mastodon.social/tags/mentalhealthmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mentalhealthmemes</a> <a href="https://mastodon.social/tags/depressionhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#depressionhumor</a> <a href="https://mastodon.social/tags/depressionmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#depressionmemes</a> <a href="https://mastodon.social/tags/bpdmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#bpdmemes</a> <a href="https://mastodon.social/tags/bpdhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#bpdhumor</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/urgentcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#urgentcare</a> <a href="https://mastodon.social/tags/emergencyroom" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#emergencyroom</a> <a href="https://mastodon.social/tags/medicalhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#medicalhumor</a> <a href="https://mastodon.social/tags/healthhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#healthhumor</a>

Valerie Roney<a href="https://beige.party/@HG" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@HG</a> there was a meme going around about imagining you are a demon possessing a human body. Gotta take care of it, those humans are fragile! It's a framing that helps me and amuses me. Also check in with the <a href="https://disabled.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> community. That's the space were everybody is already working at the rhythms of self care, and celebrating the small things because this trivial stuff is harder than you think. Build community with the kinds of ppl who will cheer and throw glitter when you floss your teeth. 🎉

Chronic Illness Humor FunnyPlease understand that a chronically ill person might prefer to text than talk on the phone because it preserves our energy. <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesslife</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonielife</a>

Tom KindlonTrial By Error: New Study Documents Iatrogenic Harm from Perceived Psychosomatic and Psychiatric Misdiagnoses of Rheumatic Diseases 31 March 2025 By David Tuller, DrPH<a href="https://virology.ws/2025/03/31/trial-by-error-new-study-documents-iatrogenic-harm-from-perceived-psychosomatic-and-psychiatric-misdiagnoses-of-rheumatic-diseases/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://virology.ws/2025/03/31/trial-by-error-new-study-documents-iatrogenic-harm-from-perceived-psychosomatic-and-psychiatric-misdiagnoses-of-rheumatic-diseases/</a><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://disabled.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://disabled.social/tags/InvisibleIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#InvisibleIllness</a>

VarceptiousMy boy enjoying his new mat we got customized just for him!<a href="https://veganism.social/tags/ServiceDogInTraining" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ServiceDogInTraining</a> <a href="https://veganism.social/tags/ServiceDogGear" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ServiceDogGear</a> <a href="https://veganism.social/tags/Dachshund" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dachshund</a> <a href="https://veganism.social/tags/MiniDachshund" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MiniDachshund</a> <a href="https://veganism.social/tags/Puppy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Puppy</a> <a href="https://veganism.social/tags/DogsWithAJob" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DogsWithAJob</a> <a href="https://veganism.social/tags/BirgerTheWeen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BirgerTheWeen</a> <a href="https://veganism.social/tags/EnjoyTheGlimmersInLife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EnjoyTheGlimmersInLife</a> <a href="https://veganism.social/tags/Glimmers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Glimmers</a> <a href="https://veganism.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://veganism.social/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Disability</a> <a href="https://veganism.social/tags/Disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Disabled</a> <a href="https://veganism.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://veganism.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://veganism.social/tags/SmallTeamProud" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SmallTeamProud</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#jointhealth</a> <a href="https://mastodon.social/tags/jointinflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#jointinflammation</a> <a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#jointpain</a> <a href="https://mastodon.social/tags/jointmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#jointmemes</a>

datum (n=1)Hey! Are you in the USA? Do you (or someone you know) have any of:<ul><li>hypersomnia</li><li>complex sleep disturbances</li><li>postural orthostatic tachycardia syndrome, or POTS</li></ul>which started or worsened after a bout of acute COVID-19?Trials are open for treatments for these symptoms!<blockquote>Those interested in participating in the trials can contact the clinic for screening to see if they are eligible. The team can be reached via email at covidtrialsuva@uvahealth.org, or by phone at 434-243-4008 or toll-free at 855-882-5334.</blockquote>and they seem like good folks:<blockquote>“We see patients coming in who are frustrated because they look fairly normal, but they cannot fully function and are not being believed,” she said. “So, for those people, I want to say this is truly a disease and you are not imagining anything.”</blockquote>While UVA is in Virginia the article suggests it is a USA-wide national study.<a href="https://news.virginia.edu/content/uva-health-takes-aim-long-covid-two-national-clinical-trials" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://news.virginia.edu/content/uva-health-takes-aim-long-covid-two-national-clinical-trials</a><a href="https://zeroes.ca/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID19</a> <a href="https://zeroes.ca/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID</a> <a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a> <a href="https://zeroes.ca/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://zeroes.ca/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LC</a> <a href="https://zeroes.ca/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PEM</a> <a href="https://zeroes.ca/tags/PostExertionalMalaise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostExertionalMalaise</a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://zeroes.ca/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a>

Chronic Illness Humor Funnyby fruitbombcomics<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a>

BroadwaybabytoIt took me over a decade to realize I was disabled.Internalized ableism is no joke. It can lead us to push our bodies and deny our reality.I was a sickly child my whole life - but we didn’t discover the reasons until I turned 30. It was validating to finally have answers. A name for my conditions, explanations for why I never felt well & why my body couldn’t do what other people could. Despite my now having validation and multiple diagnoses of chronic illness and disability - I didn’t identify as disabled. I was still working, still supporting myself… So surely that meant I wasn’t right? I was scared of what it would mean if I said I was disabled. Would people judge me? Think less of me? Would my non disabled friends distance themselves and would disabled people think I wasn’t “disabled enough”? I recognize now these were questions that were mainly due to my own internalized ableism. I was worried about these things because I didn’t understand dynamic disability.I was also grieving my health. Even though I was sick before the diagnosis - once they had a name and no cure I had to come to terms with the fact that I was never going to get better.I was likely the most functional I would ever be - and would probably lose function as I aged. That reality hit me like a ton of bricks and it took me a long time to reach a point of acceptance. An injury followed by a viral infection took my remaining function away from me and left me completely housebound.It wasn’t until a caring and compassionate doctor explained the concept of dynamic disability that I realized I WAS disabled and that I had been for many years. This good doctor encouraged me to write about my experiences to help others - and while it took me time to become confident enough to speak out - I’m so glad I did. The fact that I had so much fear of judgement, so much difficulty accepting reality only served to show me why we need more disability advocates. We need people telling their stories. It helps with acceptance of chronic illness & educates others on dynamic disability If Covid has taught us anything it’s that a large number of people still see the disabled as “expendable”.How many times have we heard “Covid is mild unless you have pre-existing conditions”. This has been the party line for the entire pandemic Many folks don’t realize that it’s rooted in ableism. To say it’s only dangerous for those who are already sick is to say that we don’t matter. That killing or maiming us is acceptable as long as the non disabled can continue to live life as though we’ve gone back to 2019 As a result many disabled and high risk individuals have been isolating for five years. Have been quietly exited from society to protect themselves. We started to re-enter the world when high quality respirators became easily available - but even that is problematic We get bullied from the “covid is over” crowd. They want us at home. They want us to not exist. Because we are a constant reminder of their own mortality and the fact that they are risking disability every time they get a Covid infection. But here’s the incredible thing I’ve seen happen in the last few years. The disability community are organizing. They may be isolated at home but they’ve found community online. They’ve galvanized around inspiring leaders with strong voices and are creating a movement. Not just for Covid caution & Long Covid but for the rights of disabled people across the world. For better access to healthcare, more inclusion and recognition of diversity and minority groups. Hashtags, campaigns and artwork have started taking off. We are getting louder Activism is more important now than ever before, as we face existential threats due to the changing political landscape.It’s a powerful moment for intersectionality. All of us who are marginalized can and should be working together to bring about change It’s a scary time, but I have hope whenever I see people speaking out. Sharing stories. Refusing to go gently.I’m glad to have finally stepped up and found my voice - and I hope that by sharing my story I play a small role in making the world safer If you’re disabled or chronically ill (or even if you aren’t sure) and you’re afraid to speak up - please don’t be. Speak up. Reach out. Share your story. There’s an incredible community waiting for you and we will lift you up and help you find your voice.Activism is important right now, but so is pacing. We must work to save our spoons amidst the torrent of bad news & stress we’re inundated with.“We are a community. We carry each other through the tough times. Our love and support knows no borders, so when a group of us are hurting we all hurt”<a href="https://www.disabledginger.com/p/spoon-saving-social-media-tips-and" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.disabledginger.com/p/spoon-saving-social-media-tips-and</a><a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#covidisairborne</a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ableism</a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#covidisnotover</a> <a href="https://zeroes.ca/tags/resist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#resist</a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://zeroes.ca/tags/disabilityrights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabilityrights</a>

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