Shakedown Social

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Sheldon<a href="https://beige.party/@intransitivelie" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@intransitivelie</a> how’d you find some doctors who were knowledgeable? I’m not confirmed, but I’ve been alternately sleepy and wide awake at all times of day ever since I was a teenager. My wife was the one who figured out I had a pattern of following a 26 hour day. I always thought my weird sleep pattern was an expression of ADHD until my wife identified that I had a pattern and I read about <a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a>.I’ve been extremely lucky to have a life that tolerates my erratic sleep schedule, but I have been having thoughts to look for expert consult to see if there’s anything I could try. Do you do anything to help you manage? The most helpful thing I’ve done was wear a Fitbit to track my sleep times and heart rate. It helps me figure out when I should probably be sleeping, but it’s still a lot of guesswork once I veer off my cycle.Indeed this is rough! I met other sighted N24’s in a Facebook support group once and so many of them could barely lead anything resembling a life. It was depressing to see.

Sheldon<a href="https://autistics.life/@Uair" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@Uair</a> I got through six years of college by sleeping a few hours here and there whenever I could, but I can't do that anymore. Now if I try to segment my sleep, I'm just tired all the time and I often end up spending extra time asleep and not getting much benefit from it. Have you ever sought help for it? There is supposedly a leading expert on sighted <a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a> not too far away from me and I'm thinking of looking that doctor up sometime soon. When I was younger, I could just force myself to stay awake a full 24 hours to figure out where my sleep clock was, but that's too hard on my body now. Do you have any strategies for keeping your sleep segments in advantageous intervals or do you just always end up with the equivalent of 4 hours of sleep at night and a 4 hour nap everyday?

Sheldon<a href="https://sfba.social/@mvilain" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mvilain</a> I'm not sure if I would ever have discovered this w/o my wife. I've had odd sleep habits ever since I was a teen & could alternately fall asleep anywhere or be wide awake for great lengths of time.My wife had a rule that if I got caught up working on projects as I do, I had to make time to have dinner with her. I would always miss dinner for a few nights every other week and it pissed her off to no end, but she noticed a pattern and planned to be solo every 10 days or so.When the NASA Mars mission was the big news, there were stories about how the mission managers followed 26 hour Mars days to maximize their opportunity. She joked I'd be perfect for that job.Then I saw an article about a baseball quant for the Red Sox who was a mysterious figure of the team's analytics department. Everyone knew him, but few ever saw him. His day-night schedule was too erratic.His <a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a> is way more severe than mine, but it sounded like my story. Combined with all of the above, it was the big Ah-ha moment.

SheldonI'm a little bit late, but happy Daylight Savings Time to America or as I like to call it, <a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a> Day!Today's the day when everyone gets to experience for one day what I experience on an everyday basis. On this day, people get to feel what it's like when their body clock is forced to wake up an hour earlier and go to sleep an hour earlier. People who have Non24 have circadian rhythms that aren't sensitive to sunlight so we can't follow normal 24 hour days... not easily at least. My normal day is 26 hours long so every single day I have to go to bed and wake up 2 hours later or it becomes impossible to get any quality sleep.Mostly it sucks, but there is one limited advantage to having Non24. I'm able to naturally stay awake for 1-2 additional hours without fatigue. This is usually more than negated by the chaos created by not being able to sleep well, but when facing urgent deadlines, the extra hour of clarity gives you more time to be at peak effectiveness.<a href="https://sfba.social/tags/DST" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DST</a> <a href="https://sfba.social/tags/sleep" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#sleep</a>

Sheldon<a href="https://mastodon.scot/@cowtan" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@cowtan</a> I've gone stretches of sleeping a normal 24, but like your son, it was very easy to knock me off.Even when I managed, I had incredible daytime sleepiness. I did a lot of napping. It didn't matter how many hours I got at night, I could either be barely awake on a full night's sleep or wide awake on 3 hours.I was a student and worked a traditional job when I was following a 24 cycle so napping wasn't easy. I slept anywhere I could... face down over my arms in a coffeeshop, on a strip of grass, in class, in my car, under my desk at work.Now that I attempt to follow a 26 hours schedule, I rarely nap, but it's not always easy to know what the schedule is once you have to deviate from it for more than a couple of days because it's hard to know when you're perfectly on schedule. I can be 8 hours off, but by sleeping 2 hours later each day, it's still tenable. It'd be like a normal person training to sleep at 6pm or 6am daily, except I don't know what time my body thinks it is.<a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a>

Janis La Couvée<a href="https://sfba.social/@sysop408" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@sysop408</a> good morning Sheldon - so sorry you had a rude awakening. And - thank you!!! I am a curious person and looked at your profile. Found <a href="https://mastodon.online/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a> and tumbled down a rabbit hole. My husband has a brain injury and a very disrupted sleep cycle. You may have just helped me find an explanation. "In some cases, non-24-hour sleep-wake disorder in sighted people may be linked to a traumatic brain injury." <a href="https://www.sleepfoundation.org/non-24-sleep-wake-disorder" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.sleepfoundation.org/non-24-sleep-wake-disorder</a>

Sheldon<a href="https://mastodon.social/@TrinitronX" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@TrinitronX</a> I wonder if other people who have undiagnosed or late diagnosed Non24 have the same fascination with stories about people who can't sleep.Even before I realized I had a bonafide sleep disorder, I had been fascinated with stories about sleep, or especially people who couldn't sleep. It's as if subconsciously, I recognized that was my own representation in front of me. I remember watching the 2002 remake of the movie Insomnia and being completely riveted, not by the suspense or mystery, but by its depiction of <a href="https://sfba.social/tags/sleep" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#sleep</a> deprivation. <a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a>

Sheldon<a href="https://alpaca.gold/@poppacalypse" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@poppacalypse</a> oh, short naps are not easy for me either. I mostly had to take naps in public or semi-public places where it was easier to wake up because there was so much stimulation around you.Getting things done actually hasn't been too hard as long as I'm rested. Doing work as part of a team is hard if it's a long project because of all the meetings, but most of the time I'm a solo dev and nearly all of my clients have been with me a long time. The mutual familiarity helps a lot. They know how I work, most know about my sleep issues, and I know them so well they don't need to explain very much for me to know exactly what they need.There's only a few days a month when I can't arrange to be awake for at least a couple of normal business hours so as long as people can plan a week ahead to schedule meetings, it's tolerable for me.Having a life outside of work is where things get dicey because social schedules are more unpredictable and harder to juggle.<a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a> <a href="https://sfba.social/tags/SleepDisorder" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SleepDisorder</a> <a href="https://sfba.social/tags/insomnia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#insomnia</a>

Sheldon<a href="https://alpaca.gold/@poppacalypse" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@poppacalypse</a> hey that’s great! I’ve always had like 10 alarms to wake me up and it’s just like your story once I’m able to find my natural sleep times. I just wake up naturally 7-8 hours afterwards. Unfortunately it’s hard to figure out when that natural time should be on any given day when it always creeps forward. Even when I can’t find it, it’s easier for me to just go to bed 2 hours later every day because that’s like establishing a normal bedtime even if it’s not the ideal bedtime. Trying to get up at the same time every day for me is like trying to get up 2 hours earlier every day. You can’t do it for long without consequences. <a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a> <a href="https://sfba.social/tags/SleepDisorder" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SleepDisorder</a> <a href="https://sfba.social/tags/insomnia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#insomnia</a>

Sheldon<a href="https://alpaca.gold/@poppacalypse" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@poppacalypse</a> there’s also delayed sleep phase syndrome, which is known to be much more common and similar to <a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a>, so also look into that. When I was in college I was known as they guy who could fall asleep anywhere. My friends were amazed when I fell asleep at a rock concert. I was also awake at any given time too. I spent my college years as a paradox of this guy who everyone saw asleep at unusual times, but also was someone who slept far less than anyone else because I just couldn’t sleep when I tried to. I survived by sleeping 30-90 minutes here and there… cafes, library, benches, the subway train… everywhere. I slept so much on the train I developed a sixth sense for when to wake up and get off the train. I rarely missed my stop.These days I have more control over my schedule so I get more sleep, but it’s still difficult to manage. If I ever had to work a normal job again it might be a problem.

SheldonI woke up at 7pm today. Tomorrow I'll probably get up at 9pm. Around this time next week, I'll be waking up at 7am. This is normal for me. I have a rare-ish circadian rhythm disorder known as <a href="https://sfba.social/tags/Non24" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Non24</a>. My sleep cycle doesn't track with the sun. It's not at all rare amongst people who are blind, but it's rare amongst sighted people.I also suspect it's actually more common than believed & there are people out there reputed to be lazy, immature, or erratic when they just can't sleep normally.

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