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#may12

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Irish ME/CFS Association<p>12/</p><p>May 12 is International <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this<br>(well-made) video.</p><p>(3 minutes)</p><p><a href="https://www.youtube.com/watch?v=IOflARSgNnE" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=IOflARSgNn</span><span class="invisible">E</span></a></p><p>Day 12<br><a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://mastodon.ie/tags/May12th" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12th</span></a> <a href="https://mastodon.ie/tags/WorldMEDay2023" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WorldMEDay2023</span></a><br><a href="https://mastodon.ie/tags/WorldMEday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WorldMEday</span></a> <a href="https://mastodon.ie/tags/MEAwarenessDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAwarenessDay</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Fiona Craig<p>In spite of it all, I persevere.</p><p>I do as much as I can every day to maintain what little stamina and fitness I have, whilst keeping below a level at which I'll provoke a crash.</p><p>I can poke the internet, staying in contact with other people, because I have a properly set up computer, and I pretty much touch type, so little to no wrist involvement.</p><p>But in between activities, when I MUST rest, I rage, against the people who deny, deny and defund research into the condition.</p><p><a href="https://mastodon.scot/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://mastodon.scot/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://mastodon.scot/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a></p>
Fiona Craig<p>"Happy" International ME Day!</p><p>So how is it today?</p><p>I did some cleaning last week, stopping Saturday. The pain in my muscles is constant, even in my sleep. My arms are fizzy today, worse than previous days. My right wrist has flared up so no lifting/using it.</p><p>Washing was a struggle this morning.</p><p>I required assistance to bring in the food delivery.</p><p>I batch cooked before starting the housework, because I knew I'd be unable to cook for days.</p><p><a href="https://mastodon.scot/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://mastodon.scot/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://mastodon.scot/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> <a href="https://mastodon.scot/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a></p>
Irish ME/CFS Association<p>12/</p><p>May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month).</p><p>You can help by sharing and/or liking this image.</p><p>Day #12</p><p><a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://mastodon.ie/tags/May12th" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12th</span></a> <a href="https://mastodon.ie/tags/MEAwarenessDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAwarenessDay</span></a> <a href="https://mastodon.ie/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MillionsMissing</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Irish ME/CFS Association<p>11/<br>May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.</p><p>You can help by sharing +/or liking this image.</p><p>Day #11</p><p><a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://mastodon.ie/tags/May12th" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12th</span></a> </p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Irish ME/CFS Association<p>11/</p><p><a href="https://mastodon.ie/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> is <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> / <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> Day</p><p>&amp;</p><p>May is <a href="https://mastodon.ie/tags/MECFSawarenessmonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFSawarenessmonth</span></a></p><p>Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe &amp; others</p><p><a href="https://www.youtube.com/watch?v=9_HwOUiImvw" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=9_HwOUiImv</span><span class="invisible">w</span></a></p><p><a href="https://mastodon.ie/tags/Day11" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Day11</span></a></p><p><a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://mastodon.ie/tags/SevereME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SevereME</span></a> <a href="https://mastodon.ie/tags/SevereMECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SevereMECFS</span></a><br><a href="https://mastodon.ie/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a> <a href="https://mastodon.ie/tags/VerySevereME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>VerySevereME</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>I actually deteriorated over time, through following exercise, like many others with <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a>. Improving or even stabilising is not the only possible outcome following an infection.</p><p>Plenty of research shows a significant percentage of those with <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> satisfy <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> criteria</p><p>Unfortunately, through a lack of research, effective treatments don't exist for ME so people can be left languish for decades with debilitating symptoms, like I have been<br><a href="https://disabled.social/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses.</p><p>Unlike Covid lockdowns, the lockdowns we have dealt with for years due to <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ME</span></a> continue</p><p><a href="https://disabled.social/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
ahimsa<p><a href="https://disabled.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MillionsMissing</span></a> 2025: Sending Out An SOS</p><p>Reminder: Two planning meetings for <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAction</span></a> Millions Missing 2025 (for ME/CFS Awareness Day - May 12) are scheduled for tomorrow! </p><p><a href="https://www.meaction.net/2025/04/08/why-were-sending-out-an-sos-this-millionsmissing/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/2025/04/08/why-we</span><span class="invisible">re-sending-out-an-sos-this-millionsmissing/</span></a></p><p>Here's how to sign up</p><p>Meeting 1: Thursday, April 10, 12 pm Pacific, 3 pm Eastern</p><p><a href="https://us06web.zoom.us/meeting/register/EHwZzzubSpqIi31vM1VRNQ#/registration" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">us06web.zoom.us/meeting/regist</span><span class="invisible">er/EHwZzzubSpqIi31vM1VRNQ#/registration</span></a></p><p>Meeting 2: Thursday, April 10, 3 pm Pacific / 6 pm Eastern</p><p><a href="https://us06web.zoom.us/meeting/register/2hriH4c1RU6VbSGbEBrjHA#/registration" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">us06web.zoom.us/meeting/regist</span><span class="invisible">er/2hriH4c1RU6VbSGbEBrjHA#/registration</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> </p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MEAwareness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAwareness</span></a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a></p>
ahimsa<p>News from <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAction</span></a> - planning for <a href="https://disabled.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MillionsMissing</span></a> 2025 (May 12)</p><p>"If you are interested in organizing a protest, gathering in a park as a community or making art, please join one of our protest organizing meetings on Thursday, April 10"</p><p>Meeting 1: Thursday, 4/10, 12pm PT/3pm ET<br><a href="https://us06web.zoom.us/meeting/register/EHwZzzubSpqIi31vM1VRNQ#/registration" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">us06web.zoom.us/meeting/regist</span><span class="invisible">er/EHwZzzubSpqIi31vM1VRNQ#/registration</span></a></p><p>Meeting 2: Thursday, 4/10, 3pm PT/6pm ET<br><a href="https://us06web.zoom.us/meeting/register/2hriH4c1RU6VbSGbEBrjHA#/registration" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">us06web.zoom.us/meeting/regist</span><span class="invisible">er/2hriH4c1RU6VbSGbEBrjHA#/registration</span></a></p><p>Details:<br><a href="https://www.meaction.net/2025/04/02/millionsmissing-2025-sending-out-an-sos/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/2025/04/02/millio</span><span class="invisible">nsmissing-2025-sending-out-an-sos/</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> </p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/MEAwareness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAwareness</span></a> <a href="https://disabled.social/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a></p>
Irish ME/CFS Association<p>12/</p><p>May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month).</p><p>You can help by sharing and/or liking this image.</p><p>Day #12</p><p><a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://mastodon.ie/tags/May12th" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12th</span></a> <a href="https://mastodon.ie/tags/MEAwarenessDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAwarenessDay</span></a> <a href="https://mastodon.ie/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MillionsMissing</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Irish ME/CFS Association<p>11/</p><p>May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day. </p><p>You can help by sharing +/or liking this image.</p><p>Day #11</p><p><a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://mastodon.ie/tags/May12th" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12th</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
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