Shakedown Social

Jan R. Boehnke"The article focusses primarily on presenting the case for adopting ROM and is a starting point—a primer—for any person working in the field of student counselling, or psychological therapies more generally, who is considering the challenges of adopting ROM."Quote from: <a href="https://onlinelibrary.wiley.com/doi/full/10.1002/capr.12694" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://onlinelibrary.wiley.com/doi/full/10.1002/capr.12694</a><a href="https://mastodon.social/tags/PsychotherapyResearch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PsychotherapyResearch</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/Feedback" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Feedback</a>

Jan R. BoehnkeThe March* issue of Quality of Life Research includes the call for papers "Quality of life dimensions in people living with mental disorders: moving beyond global scores" <a href="https://rdcu.be/ehPIy" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://rdcu.be/ehPIy</a>We encourage submissions of research and practice using nuanced approaches to <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> & <a href="https://mastodon.social/tags/QOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#QOL</a>, adopting the term “mental disorder” broadly, e.g., based on standard diagnoses or using transdiagnostic perspectives.<a href="https://mastodon.social/tags/SMI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SMI</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/Psychometrics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Psychometrics</a> <a href="https://mastodon.social/tags/ClinicalPsychology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ClinicalPsychology</a> <a href="https://mastodon.social/tags/PsychotherapyResearch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PsychotherapyResearch</a>* 👇

Jan R. BoehnkeTrigg et al discussed conceptualisations of meaningful between-group differences: <a href="https://rdcu.be/ehHdD" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://rdcu.be/ehHdD</a>A comment by Kevin Weinfurt advances the discussion w 4 points <a href="https://rdcu.be/ehHfS" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://rdcu.be/ehHfS</a><a href="https://mastodon.social/tags/RCT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#RCT</a> <a href="https://mastodon.social/tags/Estimand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Estimand</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a>From the abstract:(1) rather than “between-group difference,” specify the level at which you wish to infer a treatment effect: population or individual;(2) points of reference may be different for interpreting individual- and population-level treatment effect estimates; ...

Jan R. BoehnkeHow to select relevant items for monitoring? Case example of a pragmatic process for mapping immune checkpoint inhibitor <a href="https://mastodon.social/tags/SideEffects" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SideEffects</a> to items from existing item libraries ( <a href="https://mastodon.social/tags/CTCAE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CTCAE</a> <a href="https://mastodon.social/tags/EORTC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EORTC</a> <a href="https://mastodon.social/tags/FACIT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FACIT</a> ) <a href="https://jpro.springeropen.com/articles/10.1186/s41687-025-00855-8" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://jpro.springeropen.com/articles/10.1186/s41687-025-00855-8</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/JPRO" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#JPRO</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/PatientReported" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientReported</a> <a href="https://mastodon.social/tags/ePRO" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ePRO</a>

Jan R. Boehnke...the analyses highlight the importance of sleep as a potential driver of adolescent wellbeing, and that the developmental cascade may be different across genders.<a href="https://mastodon.social/tags/CYPMH" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CYPMH</a> <a href="https://mastodon.social/tags/MentalHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MentalHealth</a> Read Claudia Rutherford's and my thoughts when launching this format in the journal and why we thought <a href="https://mastodon.social/tags/RegisteredReports" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#RegisteredReports</a> would fit well into <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/HealthEconomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HealthEconomics</a> <a href="https://mastodon.social/tags/RCT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#RCT</a> research processes: <a href="https://rdcu.be/d8JXk" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://rdcu.be/d8JXk</a>

Jan R. BoehnkeA <a href="https://mastodon.social/tags/ScopingReview" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ScopingReview</a> (n=6) from one of our <a href="https://mastodon.social/tags/ProfDoc" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ProfDoc</a> students highlights the profound impact of adenomyosis and how important a better understanding of the lived experience is to improve diagnostic pathways <a href="https://bmjopen.bmj.com/content/15/1/e087122.full" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://bmjopen.bmj.com/content/15/1/e087122.full</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/DundeeUni" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DundeeUni</a>

Jan R. BoehnkeIn case you are into Christmas and estimands, maybe this article is for you? <a href="https://link.springer.com/article/10.1186/s13063-024-08604-w" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://link.springer.com/article/10.1186/s13063-024-08604-w</a>"In reality, the statistical elf would have found the sample size was too small (nine reindeers) to estimate these estimands reliably using the discussed methods."<a href="https://mastodon.social/tags/RCT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#RCT</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/ResearchDesign" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ResearchDesign</a> <a href="https://mastodon.social/tags/Evaluation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Evaluation</a>

Jan R. BoehnkeWhen you leave a job, there is always unfinished business, stuff that could have gone better etc.Therefore, I am glad to see that "Quality of Life Research" has passed 2,000 submissions this week, which makes 2024 (so far) the year with the second most submissions (after 2020) in the history of the journal.Thanks to authors and reviewers supporting us! 🙇<a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/HealthEconomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HealthEconomics</a>Earlier news post on paper awards and usage: <a href="https://mastodon.social/deck/@jrboehnke/113629324934342255" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://mastodon.social/deck/@jrboehnke/113629324934342255</a>

Jan R. BoehnkeRead about the editors' choice papers, most downloaded, and interacted paper in "Quality of Life Research": <a href="https://www.isoqol.org/news-from-quality-of-life-research-112024/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.isoqol.org/news-from-quality-of-life-research-112024/</a>The last annual update I will be involved in... 😅👋<a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/HealthEconomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HealthEconomics</a> <a href="https://mastodon.social/tags/Psychometrics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Psychometrics</a> <a href="https://mastodon.social/tags/EQ5D" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EQ5D</a> <a href="https://mastodon.social/tags/COSMIN" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COSMIN</a> <a href="https://mastodon.social/tags/PROMIS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PROMIS</a>

Jan R. BoehnkeCall for papers for a special collection on "Quality of life in people with mental disorders – beyond global scores" <a href="https://link.springer.com/journal/11136/updates/27711536" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://link.springer.com/journal/11136/updates/27711536</a> inviting submissions of research and clinical practice using nuanced approaches to health-related quality of life. <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a>Linked editorial: <a href="https://rdcu.be/d03qD" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://rdcu.be/d03qD</a><a href="https://mastodon.social/tags/CfP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CfP</a> <a href="https://mastodon.social/tags/HealthEconomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HealthEconomics</a> <a href="https://mastodon.social/tags/Psychometrics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Psychometrics</a>

Jan R. Boehnke10/x Thanks for reading in case you made it this far.I noticed that I forgot speakers' affiliations in some of the posts, so please find here again the abstract.And once again links to the book <a href="https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#</a>and the book review: <a href="https://rdcu.be/dXACh" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://rdcu.be/dXACh</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a> <a href="https://mastodon.social/tags/PhilosophyOfScience" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PhilosophyOfScience</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a>

Jan R. Boehnke8/x The last chapter focuses on the contexts of use of <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> measures (e.g., <a href="https://mastodon.social/tags/FDA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FDA</a>, agencies, <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a> initiatives). Kevin Weinfurt (👇) and Rebecca Jackson discussed how even the often ignored response options reflect assumptions of how we want to represent what we are measuring!<a href="https://mastodon.social/tags/PhilosophyOfScience" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PhilosophyOfScience</a> <a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Measurement</a>

Jan R. Boehnke5/x Alessandra Basso (LSE) highlighted hermeneutic marginalisation and misrepresentation as injustices 👇An important question the book raises is how to elicit and integrate all voices and still recognising that all positions are fallible. <a href="https://mastodon.social/tags/Epistemology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Epistemology</a><a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Measurement</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/Philosophy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Philosophy</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a>

Jan R. Boehnke3/x Sebastian Rodriguez Duque (McGill U) discussed "ongoing coordination", i.e. the process how we establish a link btw our instruments and the constructs they purport to measure.One of the points of modern validity theory (and where philosophers and methodologists deviate strongly from what is perceived and enacted practice) is, that this process essentially never ends.<a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Measurement</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PhilosophyOfScience" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PhilosophyOfScience</a>

Jan R. Boehnke2/x We had a good panel of presenters.Melanie Hawkins (Swinburn UT) opened the session with a discussion of how values and assumptions impact on interpretations of scores in application contexts, and how this may reinforce and exacerbate societal inequities.<a href="https://mastodon.social/tags/PhilosophyOfScience" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PhilosophyOfScience</a> <a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Measurement</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a>

Jan R. Boehnke1/x It was great fun to co-organise the <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a> discussion of Leah McClimans' book" <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Measurement</a>: Perspectives from philosophy and health-related quality of life" <a href="https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#</a>You can read the book review by Sebastian Rodriguez Duque here: <a href="https://rdcu.be/dXACh" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://rdcu.be/dXACh</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a><a href="https://mastodon.social/deck/@jrboehnke/113315840967665589" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://mastodon.social/deck/@jrboehnke/113315840967665589</a>

Jan R. BoehnkeProgramme for the final day of <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a> once again jam-packed*I am looking forward to chairing <a href="https://mastodon.social/tags/Plenary4" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Plenary4</a> "Broaden the scope: health outcomes assessment beyond PROs" with a great line-up of speakers and topics.Cologne music suggestion: Bukahara: Tales of the Tides <a href="https://www.youtube.com/watch?v=9GKmDK_EMhE" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.youtube.com/watch?v=9GKmDK_EMhE</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a>*Learn German? "pickepackevoll"

Jan R. BoehnkeReally glad how our symposium around Leah McClimans' book " <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Measurement</a>: Perspectives from philosophy and health-related quality of life" went.I really enjoyed working with Leah on this as well as reading her thought-provoking book:<a href="https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#</a><a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a>

Jan R. BoehnkeTuesday programme at <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a>Looking forward to presenting our <a href="https://mastodon.social/tags/Symposium4" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Symposium4</a> on <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/measurement" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#measurement</a> with perspectives from philosophy and <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> researchers.Co-organised by Leah McClimans and myself, we have invited a set of stellar colleagues to discuss key themes from her new book! <a href="https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#</a>

Jan R. Boehnke<a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL</a>#1/ Excellent talk by Kevin Weinfurt in <a href="https://mastodon.social/tags/Plenary1" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Plenary1</a> discussing multiple types of measures (go also to <a href="https://mastodon.social/tags/Plenary4" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Plenary4</a> for that!), increased use of high-intensity longitudinal data, and generative AI for assessments.Start reading his work: <a href="https://rdcu.be/dWXSz" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://rdcu.be/dWXSz</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/Psychometrics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Psychometrics</a>#2/ Not sure this is what the <a href="https://mastodon.social/tags/ISOQOL_NewInvestigators" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ISOQOL_NewInvestigators</a> wanted when asking me to talk about advice for manuscript writing, but this is the slide people talked to me about 👇 <a href="https://mastodon.social/tags/NightshiftEditor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NightshiftEditor</a> <a href="https://mastodon.social/tags/ScientificPublishing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ScientificPublishing</a>

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