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#genetics

7 posts7 participants0 posts today
Public
Tirrimas :us_distress:

I've got a lot of thoughts about this, but the overriding one is gratitude that these folks finally woke up.

"Tzovaras had hoped that access to genetic data would improve human health and medicine, but now considers that aspiration naive. His 'bleaker' and more 'sober' view today is that providing food security and access to stable housing would have a more significant impact on human health than finding genetic answers to common diseases that follow from social and environmental problems, such as food and housing insecurity."

#openSNP
#genetics
#23andMe
#USPol

Genetic data sharing service openSNP to close down
theregister.com/2025/04/01/ope

The Register · Genetic data repo OpenSNP to self-destruct before authoritarians weaponize itBy Thomas Claburn
Public
Lisa Kalayji

"[creator of open source genetic database OpenSNP] Greshake Tzovaras says that he is particularly concerned about the rise of DNA phenotyping, which is a dubious process in which DNA “portraits” of potential suspects are generated based on a DNA sample; he called the practice “unreliable nonsense,” and said that a startup had once approached OpenSNP to help them create a DNA phenotyping product to sell to law enforcement. "That's something we don't want to see in the world," he said.

“Across the globe there is a rise in far-right and other authoritarian governments. While they are cracking down on free and open societies, they are also dedicated to replacing scientific thought and reasoning with pseudoscience across disciplines,” Greshake Tzovaras wrote. “The risk/benefit calculus of providing free & open access to individual genetic data in 2025 is very different compared to 14 years ago. And so, sunsetting openSNP – along with deleting the data stored within it – feels like it is the most responsible act of stewardship for these data today.”

404media.co/open-source-geneti

404 Media · Open Source Genetic Database Shuts Down to Protect Users From 'Authoritarian Governments'"The risk/benefit calculus of providing free & open access to individual genetic data in 2025 is very different compared to 14 years ago."
#DNA#InfoSec#Genetics
Public
Bích-Mây Nguyễn :verified:

"23andMe customers who once turned over the most personal form of information to the company — their own genetic data — may want it back after the personal genomics and biotech startup declared bankruptcy on Sunday.

The 19-year-old company is seeking a buyer, which means that if it is not deleted, customer data could be transferred to any company that acquires 23andMe."

cbsnews.com/news/how-to-delete

CBS News · Here's how to delete your personal data and genetic sample from 23andMeBy Megan Cerullo
#data#InfoSec#CyberSec
Public
Sebastian Büttrich @ ITU

#23andme is getting ready to sell what s left (down to 11 million from 3.5 billion) - in capitalist newspeak "to Maximize Stakeholder Value Through Court-Supervised Sale Process" -

asking customers to delete their #DNA now as it will be given away.

[german]

heise.de/news/23andme-beantrag

via @mho
#genetics #geneticData

heise online · 23andme beantragt Insolvenzschutz, zielt auf Verkauf: Hinweis auf DatenlöschungBy Martin Holland
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