(((Cindy Weinstein)))<p>Reposting this in honor of my dad, <a href="https://mastodon.world/tags/WorldAlzheimersMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WorldAlzheimersMonth</span></a>, and <a href="https://mastodon.world/tags/FTDAwarenessWeek" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FTDAwarenessWeek</span></a>. Sending strength to everyone facing <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> and their <a href="https://mastodon.world/tags/caregivers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregivers</span></a> </p><p>Must-read essay on the financial costs of <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, in this case <a href="https://mastodon.world/tags/LewyBody" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LewyBody</span></a> <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, and the utter cruelty and absurdity of <a href="https://mastodon.world/tags/Medicare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Medicare</span></a> defining <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> like this: “We don’t consider dementia a medical issue." Tell that to the person suffering with the <a href="https://mastodon.world/tags/disease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disease</span></a>; tell that to the caregiver. </p><p><a href="https://www.huffpost.com/entry/dementia-diagnosis-medicare-financial-hardship_n_64efa175e4b0e2c4bd6b51c3" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">huffpost.com/entry/dementia-di</span><span class="invisible">agnosis-medicare-financial-hardship_n_64efa175e4b0e2c4bd6b51c3</span></a></p>
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#ftdawarenessweek
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(((Cindy Weinstein)))<p>Reposting this in honor of my dad, <a href="https://zirk.us/tags/WorldAlzheimersMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WorldAlzheimersMonth</span></a>, and <a href="https://zirk.us/tags/FTDAwarenessWeek" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FTDAwarenessWeek</span></a>. Sending strength to everyone facing <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> and their <a href="https://zirk.us/tags/caregivers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregivers</span></a> </p><p>Must-read essay on the financial costs of <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, in this case <a href="https://zirk.us/tags/LewyBody" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LewyBody</span></a> <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, and the utter cruelty and absurdity of <a href="https://zirk.us/tags/Medicare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Medicare</span></a> defining <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a> like this: “We don’t consider dementia a medical issue." Tell that to the person suffering with the <a href="https://zirk.us/tags/disease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disease</span></a>; tell that to the caregiver. </p><p><a href="https://www.huffpost.com/entry/dementia-diagnosis-medicare-financial-hardship_n_64efa175e4b0e2c4bd6b51c3" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">huffpost.com/entry/dementia-di</span><span class="invisible">agnosis-medicare-financial-hardship_n_64efa175e4b0e2c4bd6b51c3</span></a></p>
(((Cindy Weinstein)))<p>My heart. <a href="https://zirk.us/tags/FTD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FTD</span></a>, and other forms of <a href="https://zirk.us/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, are so cruel, "merciless," to quote from this devastating article. This sentence, written by the mother of Anna, who at 36 developed symptoms of <a href="https://zirk.us/tags/bvFTD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>bvFTD</span></a> (behavioral <a href="https://zirk.us/tags/variant" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>variant</span></a> FTD), spoke to me loudly: "I didn’t cope, I existed." <a href="https://www.yahoo.com/lifestyle/then-knew-something-very-wrong-150000846.html" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">yahoo.com/lifestyle/then-knew-</span><span class="invisible">something-very-wrong-150000846.html</span></a></p><p>It is <a href="https://zirk.us/tags/FTDAwarenessWeek" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FTDAwarenessWeek</span></a> and <a href="https://zirk.us/tags/WorldAlzheimersMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WorldAlzheimersMonth</span></a>. <br>Share your story. Break the <a href="https://zirk.us/tags/stigma" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>stigma</span></a>. Support the <a href="https://zirk.us/tags/Research" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Research</span></a>. <a href="https://zirk.us/tags/Listen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Listen</span></a> to and do what you can to help the person with <a href="https://zirk.us/tags/Dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Dementia</span></a> and their <a href="https://zirk.us/tags/caregivers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregivers</span></a></p>
(((Cindy Weinstein)))<p>My heart. <a href="https://mastodon.world/tags/FTD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FTD</span></a>, and other forms of <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dementia</span></a>, are so cruel, "merciless," to quote from this devastating article. This sentence, written by the mother of Anna, who at 36 developed symptoms of <a href="https://mastodon.world/tags/bvFTD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>bvFTD</span></a> (behavioral <a href="https://mastodon.world/tags/variant" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>variant</span></a> FTD), spoke to me loudly: "I didn’t cope, I existed." <a href="https://www.yahoo.com/lifestyle/then-knew-something-very-wrong-150000846.html" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">yahoo.com/lifestyle/then-knew-</span><span class="invisible">something-very-wrong-150000846.html</span></a></p><p>It is <a href="https://mastodon.world/tags/FTDAwarenessWeek" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FTDAwarenessWeek</span></a> and <a href="https://mastodon.world/tags/WorldAlzheimersMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WorldAlzheimersMonth</span></a>. <br>Share your story. Break the <a href="https://mastodon.world/tags/stigma" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>stigma</span></a>. Support the <a href="https://mastodon.world/tags/Research" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Research</span></a>. <a href="https://mastodon.world/tags/Listen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Listen</span></a> to and do what you can to help the person with <a href="https://mastodon.world/tags/Dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Dementia</span></a> and their <a href="https://mastodon.world/tags/caregivers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caregivers</span></a></p>
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